ArticlePatient education and counseling2019
"Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes.
Article in Patient education and counseling, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Co-designing interventions for patients with inflammatory arthritis: a systematic review.Systematic reviews · 2026Pooled it
- Disparities in Knowledge, Attitudes, and Practices Regarding Rheumatoid Arthritis Between Han and She Ethnic Groups in Ningde City, Eastern Fujian, China: A Cross-Sectional Study.Patient preference and adherence · 2026Article
- A Collection of Components to Design Clinical Dashboards Incorporating Patient-Reported Outcome Measures: Qualitative Study.Journal of medical Internet research · 2024Article
- Using the technology acceptance model to assess clinician perceptions and experiences with a rheumatoid arthritis outcomes dashboard: qualitative study.BMC medical informatics and decision making · 2024Article
- Enhancing Care Partnerships Using a Rheumatology Dashboard: Bringing Together What Matters Most to Both Patients and Clinicians.ACR open rheumatology · 2023Article
- The Challenges Toward Real-world Implementation of Digital Health Design Approaches: Narrative Review.JMIR human factors · 2022Review
- Informing the Design of Data Visualization Tools to Monitor the COVID-19 Pandemic in Portugal: A Web-Delphi Participatory Approach.International journal of environmental research and public health · 2022Article
- Co-design of an Electronic Dashboard to Support the Coproduction of Care in Pediatric Rheumatic Disease: Human-Centered Design and Usability Testing.Journal of participatory medicine · 2022Article
- From Digital Health to Digital Well-being: Systematic Scoping Review.Journal of medical Internet research · 2022Article
- Methods for Human-Centered eHealth Development: Narrative Scoping Review.Journal of medical Internet research · 2022Article
- The Application of Human-Centered Design Approaches in Health Research and Innovation: A Narrative Review of Current Practices.JMIR mHealth and uHealth · 2021Review
- The Development of the Rheumatology Informatics System for Effectiveness Learning Collaborative for Improving Patient-Reported Outcome Collection and Patient-Centered Communication in Adult Rheumatology.ACR open rheumatology · 2021Article
- The PICASO cloud platform for improved holistic care in rheumatoid arthritis treatment-experiences of patients and clinicians.Arthritis research & therapy · 2021Observational
- Developing a protocol for adapting multimedia patient-reported outcomes measures for low literacy patients.PloS one · 2021Article
- Patient and clinician perspectives on a patient-facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- [Position paper of the commission on digital rheumatology of the German Society of Rheumatology: tasks, targets and perspectives for a modern rheumatology].Zeitschrift fur Rheumatologie · 2020Review
- New galaxies in the universe of shared decision-making and rheumatoid arthritis.Current opinion in rheumatology · 2020Review
- Using Health Information Technology to Support Use of Patient-Reported Outcomes in Rheumatology.Rheumatic diseases clinics of North America · 2019Review
- Platelets: emerging facilitators of cellular crosstalk in rheumatoid arthritis.Nature reviews. Rheumatology · 2019Review
- Use of a human-centered design approach to adapt a nurse-led cardiovascular disease prevention intervention in HIV clinics.Progress in cardiovascular diseasesArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
objectiveUse of patient reported outcomes (PROs) in the routine care of rheumatoid arthritis (RA) has been shown to improve health outcomes, However, integration of PROs into the clinical visit is inconsistent. We aimed to develop a "dashboard" for RA patients to display relevant PRO measures for discussion during a routine RA clinical visit.
methodsPatients (N = 45) and providers (N = 12) were recruited from rheumatology clinics at a university center and a safety net hospital. Using a human-centered design process involving patients, clinicians, designers, and health-IT experts, we performed interviews, clinic observations, and focus groups, which subsequently guided an iterative phase of prototype testing.
resultsRA patients and their providers shared the goals of assessing wellbeing and developing a personalized treatment plan. We found conflicting views of which data were most important for guiding decision-making and for answering the patient's overarching question of "Am I OK?"
conclusionThe final dashboard simplified the display of PRO data and correlated it longitudinally to the patient's medication regimen. It also included laboratory values relevant for RA care. PRACTICE IMPLICATIONS: By presenting data graphically, the dashboard may provide a platform for patients and providers to communicate around PROs and shared goals.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.