ArticleHealth expectations : an international journal of public participation in health care and health policy2019
Barrett's oesophagus: A qualitative study of patient burden, care delivery experience and follow-up needs.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Guideline
- How are we measuring health-related quality of life in patients with a Barrett Esophagus? A systematic review on patient-reported outcome measurements.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Pooled it
- Factors influencing the patient experience of gastrointestinal endoscopic ultrasound: a Swedish cross-sectional study.Surgical endoscopy · 2026Article
- 'Why Don't We Get Counselling?': Comparing NICE Guidelines for Morphological and Genetic Cancer Risk Diagnoses.Cancer medicine · 2025Article
- Development and validation of a novel Barrett's oesophagus patient reported outcome measure (B-PROM).EClinicalMedicine · 2024Article
- Article
- Prevalence and associated factors of worry for cancer in patients with a Barrett's esophagus.Scientific reports · 2024Article
- Quality of life measures in dysplastic Barrett's oesophagus are comparable to patients with non-dysplastic Barrett's oesophagus and do not improve after endoscopic therapy.BMJ open gastroenterology · 2023Article
- Barrett Esophagus: Quality of life and factors associated with illness perception.United European gastroenterology journal · 2022Article
- Expanding beyond endoscopy: A review of non-invasive modalities in Barrett's esophagus screening and surveillance.World journal of gastroenterology · 2022Review
- Prognostic, Diagnostic and Predictive Biomarkers in the Barrett's Oesophagus-Adenocarcinoma Disease Sequence.Cancers · 2022Review
- Developing patient-orientated Barrett's oesophagus services: the role of dedicated services.BMJ open gastroenterology · 2022Review
- Patient participation in gastrointestinal endoscopy - From patients' perspectives.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Comparative quantitative survey of patient experience in Barrett's oesophagus and other gastrointestinal disorders.BMJ open gastroenterology · 2020Article
- Barrett's oesophagus: A qualitative study of patient burden, care delivery experience and follow-up needs.Health expectations : an international journal of public participation in health care and health policy · 2019Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundBarrett's oesophagus (BO), a precursor to oesophageal adenocarcinoma, requires long-term endoscopic surveillance. The rising incidence of this chronic disease has implications for service provision and patient burden. Few studies have explored BO patients' personal burden, care delivery experience and participation in health-care delivery decisions.
objectiveTo identify and explore factors impacting BO patients' health-related quality of life, follow-up needs and views on new models of follow-up care.
designAn exploratory qualitative approach was adopted using semi-structured, in-depth, one-to-one interviews, audio-recorded and transcribed verbatim. Patients undergoing BO surveillance, at a single NHS hospital, were recruited using purposive sampling with the aim of achieving maximum variation. Data were analysed using framework analysis approach, supported by NVivo Pro 11.
resultsData saturation occurred after 20 participant interviews. Ten subthemes and three main themes emerged from the analysis: (a) burden of disease-symptom control, worry of oesophageal cancer and surveillance endoscopy; (b) follow-up experiences-follow-up care, at this NHS hospital, was found to be inconsistent and often inadequate to meet patients' needs, in particular a lack of disease-specific information; and (c) follow-up needs-participants sought enhanced communication, organization and structure of care. They highly valued face-to-face interaction with a specialist, and the concept of direct secondary care access in-between endoscopies was reassuring to participants.
conclusionsThis qualitative research provides an in-depth account of the patients' perspective of BO, the effectiveness of follow-up care and patient opinion on new follow-up systems.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.