ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019
'I want to know why and need to be involved in my own care…': a qualitative interview study with liver, bile duct or pancreatic cancer patients about their experiences with involvement in care.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 39 citations in OpenAlex.
- Perioperative Expectations of Patients Undergoing Gastrointestinal Surgery for Cancer: A Systematic Review.Annals of surgical oncology · 2026Pooled it
- Bridging the communication gap in foregut cancer: A qualitative exploration of patient and caregiver perspectives.Surgical oncology insight · 2026Article
- Health-related quality of life in patients undergoing hepato-pancreato biliary cancer surgery: A prospective follow-up study.Surgery open science · 2025Article
- Factors impacting informed decision-making for patients with pancreatic cancer: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- How experienced nurses think and act in supporting patient learning: an interview study.BMC nursing · 2025Article
- Hepatocellular carcinoma and its impact on quality of life: A review of the qualitative literature.European journal of cancer care · 2022Review
- Patient preferences and experiences of participation in surgical cancer care.Worldviews on evidence-based nursing · 2022Article
- Implementation of a Work-Related Asthma Screening Questionnaire in Clinical Settings: Multimethods Study.JMIR formative research · 2022Article
- Patients' Experiences of Care With or Without the Support of an Interactive App During Neoadjuvant Chemotherapy for Breast Cancer: Interview Study.JMIR nursing · 2022Article
- A pedagogical model to enhance nurses' ability to support patient learning: an educational design research study.International journal of medical education · 2022Article
- Patients with low activation level report limited possibilities to participate in cancer care.Health expectations : an international journal of public participation in health care and health policy · 2022Review
- Patient-reported participation in hepatopancreatobiliary surgery cancer care: A pilot intervention study with patient-owned fast-track protocols.European journal of cancer care · 2022Observational
- Understanding Patient Experience in Biliary Tract Cancer: A Qualitative Patient Interview Study.Oncology and therapy · 2021Article
- Liver cirrhosis turns life into an unpredictable roller coaster: A qualitative interview study.Journal of clinical nursing · 2020Article
- In the Shadows of Patients with Upper Gastrointestinal Cancer: An Interview Study with Next of Kin about Their Experiences Participating in Surgical Cancer Care.Clinical nursing research · 2020Article
- COMMUNI.Frontiers in medicine · 2020Article
- Experiences and supportive care needs of UK patients with pancreatic cancer: a cross-sectional questionnaire survey.BMJ open · 2019Article
- Patient-reported recovery in upper abdominal cancer surgery care: A prospective study.Science progressArticle
- Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposePatients' involvement in their own care is important for those with upper abdominal tumours. Care is often conducted according to standardized fast-track care programs (FTCP), and a shorter hospital stay is one of the goals. However, there is no research providing an in-depth perspective on patients' experiences of involvement in care. In this qualitative study, we explored experiences of involvement among patients who had surgery for upper abdominal tumours and were cared for according to an FTCP.
methodsQualitative in-depth face-to-face interviews about patient involvement in care were conducted with 20 patients who had surgery for the liver, bile duct, or pancreatic cancer using an open-interview guide.
resultsThe most important findings are that customized information and active dialogue about care decisions stimulate patient involvement. We identified three themes from the analysed data: involvement depended on the quality of information, communication and involvement during the care period, and safety at discharge.
conclusionsIndividualized care and continuous information about treatment and care goals in the FTCP during the care process create trust between patients and healthcare professionals and increase patient experiences of involvement.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.