ArticleBMC geriatrics2018
"You've got to look after yourself, to be able to look after them" a qualitative study of the unmet needs of caregivers of community based primary health care patients.
Article in BMC geriatrics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- What Is Known About Family-Inclusive Inpatient Care From Patient and Family Perspectives? An Integrative Review.Journal of advanced nursing · 2025Pooled it
- Healthcare needs and priorities of older people living with heart failure and frailty: a multi-perspective study of patients, carers and clinicians.BMC geriatrics · 2026Article
- Article
- "Why do i have to get naked to have a sandwich made?": The social problem of aging and cultural shift needed to facilitate aging in place.BMC geriatrics · 2025Article
- Distance interventions for enhancing preparedness in informal caregivers of older adults: A systematic review protocol.PloS one · 2024Article
- Roles and experiences of informal caregivers of older adults in community and healthcare system navigation: a scoping review.BMJ open · 2023Article
- How initial policy responses to COVID-19 contributed to shaping dying at home preferences and care provision: key informant perspectives from Canada.BMC health services research · 2023Article
- Qualitative study exploring heterogeneity in caregiving experiences post-stroke in Singapore.BMJ open · 2023Article
- Inequities in access to directly-funded home care in Canada: a privilege only afforded to some.BMC health services research · 2023Article
- Policy programs and service delivery models for older adults and their caregivers: Comparing three provinces and two states.Health & social care in the community · 2022Article
- Food Insecurity in a Sample of Informal Caregivers in 4 Southern US States.Preventing chronic disease · 2022Article
- Health equity and wellbeing among older people's caregivers in New Zealand during COVID-19: Protocol for a qualitative study.PloS one · 2022Article
- Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting.BMC neurology · 2021Article
- Support system diversity among family caregivers of stroke survivors: a qualitative study exploring Asian perspectives.BMC geriatrics · 2021Article
- [A care concept and its contribution to the stability of home-based care arrangements : Cross-sectoral care between vision and reality].Zeitschrift fur Gerontologie und Geriatrie · 2021Review
- "Caregiving is like on the job training but nobody has the manual": Canadian caregivers' perceptions of their roles within the healthcare system.BMC geriatrics · 2021Article
- Seniors' campus continuums: local solutions for broad spectrum seniors care.BMC geriatrics · 2021Article
- Family caregivers' perceptions and experiences of participating in the learning skills together intervention to build self-efficacy for providing complex care.Geriatric nursing (New York, N.Y.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
backgroundThere is growing reliance on unpaid caregivers to provide support to people with care needs. Integrated care approaches that aim to coordinate primary care with community care known as community based primary health care (CBPHC) has been a key policy initiative across health systems; however most attention has been paid to the needs of patients and not caregivers. The objective of this paper was to explore the unmet needs of caregivers of older adults with complex care needs receiving CBPHC.
methodsThis qualitative descriptive study entailed one-to-one interviews with 80 caregivers from Canada and New Zealand where roles, experiences and needs were explored. Interview text related to unmet need was reviewed inductively and core themes identified.
resultsThree themes were identified across CBPHC sites: unrecognized role; lack of personal resources; and no breaks even when services are in place.
conclusionsTo support caregivers, models of care such as CBPHC need to look beyond the patient to meaningfully engage caregivers, address their needs and recognize the insight they hold. This knowledge needs to be valued as a key source of evidence to inform developments in health and social care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.