Evidence map›Paper›PMID 30418319›Full record

ArticleRehabilitation nursing : the official journal of the Association of Rehabilitation Nurses

Design and Usability Testing of the Stroke Caregiver Support System: A Mobile-Friendly Website to Reduce Stroke Caregiver Burden.

Michelle R Caunca, Marialaura Simonetto, Gregory Hartley, Clinton B Wright, Sara J Czaja

Abstract read
In one paragraph

Article in Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 3 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Michelle R CauncaDivision of Epidemiology and Population Health Sciences, Department of Public Health Sciences, Miller School of Medicine, University of Miami, Miami, FL, USA.
Marialaura SimonettoDepartment of Neurology, Miller School of Medicine, University of Miami, Miami, FL, USA.
Gregory HartleyDepartment of Physical Therapy, Miller School of Medicine, University of Miami, Miami, FL, USA.
Clinton B WrightNational Institute of Neurological Diseases and Stroke, Bethesda, MD, USA.
Sara J CzajaDivision of Geriatrics and Palliative Medicine, Weill Cornell Medical College, New York, NY, USA.

Funding

Effects of White and Gray Matter Integrity on Cognition in A Multi-Ethnic CohortF30NS103462 · NINDS · UNIVERSITY OF MIAMI SCHOOL OF MEDICINE · PI CAUNCA, MICHELLE RAE · 2017 to 2020
$199k
NINDS NIH HHS F30 NS103462
6 · The paper itself

Abstract

purposeThe purpose of this study was to design a mobile-friendly, Internet-based website, modeled on previously described websites for Alzheimer caregivers, to equip stroke caregivers and potentially reduce caregiver burden.

designA mixed-methods study was performed to design and test the usability of the Stroke Caregiver Support System (SCSS).

methodsAn iterative, user-centered design approach was employed in three phases: (I) Focus Groups, (II) Structured Interviews, and (III) Usability Testing. Phase I and Phase II provided information for the development of the SCSS website, whereas Phase III helped in gathering data regarding the usability and efficacy of the newly implemented SCSS website.

findingsQualitative data on caregiving and the content and design of the SCSS were obtained from focus groups and interviews. In the usability test, the nine caregivers who completed Phase III (78% women, mean age = 46, SD = 17) exhibited a high level of burden and depressive symptoms (median [Q1, Q3] Zarit burden score = 18 [16, 23], Center of Epidemiologic Studies-Depression Scale = 15 [8, 17]). Caregivers conveyed the usability of the SCSS but also expressed several needed improvements.

conclusionsParticipants reported the value of the SCSS, but further refinements are needed to maximize its usability and potential efficacy. CLINICAL RELEVANCE: The SCSS has potential to reduce caregiver burden in stroke.

Indexed as

AgedCaregiver BurdenCaregiversFemaleFloridaHumansInternetInterviews as TopicMaleMiddle AgedProgram DevelopmentQualitative ResearchStroke RehabilitationUser-Centered Design

Identifiers

PMID30418319
PMCPMC6506410

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.