ArticleHealth expectations : an international journal of public participation in health care and health policy2019
Developing quality criteria for patient-directed knowledge tools related to clinical practice guidelines. A development and consensus study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Decision aids for people facing health treatment or screening decisions.The Cochrane database of systematic reviews · 2024Pooled it
- Processes for Developing Plain Language Versions of Guidelines Recommendations: A Scoping Review.Journal of evaluation in clinical practice · 2025Article
- Up-to-dateness of German patient versions of clinical practice guidelines and potential influencing factors: A mixed-methods study.Clinical and public health guidelines · 2025Article
- Methodology and reporting quality of patient and public versions of guidelines in China: A systematic review.Clinical and public health guidelines · 2024Article
- Barriers and facilitators in developing patient versions of clinical practice guidelines - qualitative interviews on experiences of international guideline producers.BMC health services research · 2024Article
- Development and usability of a decision aid to initiate anti-osteoporosis medication treatment in patients visiting the fracture liaison service with a recent fracture.Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA · 2024Article
- Empowering Stroke Survivors: developing a patient version of guidelines to facilitate patient rehabilitation nursing of stroke patients with limb dysfunction in China.Frontiers in public health · 2024Article
- The perceptions and experience of developing patient (version of) guidelines: a descriptive qualitative study with Chinese guideline developers.BMC health services research · 2023Article
- Article
- User testing of a Scottish Intercollegiate Guideline Network public guideline for the parents of children with autism.BMC health services research · 2022Article
- A Systematic Review of Patient Engagement Experiences in Brain Disorders.Patient related outcome measures · 2022Review
- The International Patient Decision Aid Standards (IPDAS) Collaboration: Evidence Update 2.0.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Article
- Patient decision aid based on multi-criteria decision analysis for disease-modifying drugs for multiple sclerosis: prototype development.BMC medical informatics and decision making · 2021Article
- The use of PROMs and shared decision-making in medical encounters with patients: An opportunity to deliver value-based health care to patients.Journal of evaluation in clinical practice · 2020Article
- The clinical practice guideline palliative care for children and other strategies to enhance shared decision-making in pediatric palliative care; pediatricians' critical reflections.BMC pediatrics · 2019Article
- Developing quality criteria for patient-directed knowledge tools related to clinical practice guidelines. A development and consensus study.Health expectations : an international journal of public participation in health care and health policy · 2019Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
backgroundPatient-directed knowledge tools such as patient versions of guidelines and patient decision aids are increasingly developed to facilitate shared decision making. In this paper, we report how consensus was reached within the Netherlands on quality criteria for development, content and governance of these tools.
methodA 12-month development and consensus study. The consortium worked on four work packages: (a) reviewing existing criteria; (b) drafting the quality criteria; (c) safe-guarding the acceptability and feasibility of the draft criteria by participatory research in on-going tool development projects; and (d) gaining formal support from national stakeholders on the quality criteria.
resultsWe reached consensus on a 8-step guidance; describing minimal quality criteria for (a) the team composition; (b) setting the scope; (c) identifying needs; (d) the content and format; (e) testing the draft; (f) finalizing and approval; (g) dissemination and application, and (h) ownership and revision. The participants of the on-going tool development projects were positive about the quality criteria in general, but divided as to the degree of detail. Whereas some expressed a clear desire for procedural standards, others felt that it would be sufficient to provide only general directions. Despite the different views as to the degree of detail, consensus was reached in three stakeholder meetings. DISCUSSION: We successfully collaborated with all stakeholders and achieved formal support from national stakeholders on a set of minimum criteria for the development process, content and governance of patient-directed knowledge tools.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.