Evidence map›Paper›PMID 30410783›Full record

ArticlePilot and feasibility studies2018

Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities.

Wendy Duggleby, Kathya Jovel Ruiz, Jenny Ploeg, Carrie McAiney, Shelley Peacock, Cheryl Nekolaichuk, Jayna Holroyd-Leduc, Sunita Ghosh, Kevin Brazil, Jennifer Swindle and 6 more

2 registry-linked trialsOpen access · goldAbstract read
In one paragraph

Article in Pilot and feasibility studies, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
3.4field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03571165 nacompletednot on this map

Feasibility Study of an On-Line Intervention "My Tools 4 Care - In Care" for Family Caregivers of Residential-Living Older Persons With Dementia

TypeinterventionalSponsorUniversity of AlbertaRan2016 to 2017Enrolled37ConditionsDementia, FamilyArmsMy Tools 4 Care - In Care
NCT04226872 nacompletednot on this mapstarted 2020, after this paper: background citation

Supporting Family Caregivers of Persons Living With Dementia: Effectiveness and Sustainability of My Tools 4 Care-In Care

TypeinterventionalSponsorUniversity of AlbertaRan2020 to 2021Enrolled234ConditionsDementia, FamilyArmsMy Tools for Care - In Care
3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it, 24 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors at 9 institutions in 2 countries.

Wendy Duggleby1Nursing Research Chair Aging and Quality of Life, Innovations in Seniors Care Research Unit, Faculty of Nursing Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, Edmonton, AB T6G 1C9 Canada.ORCID 0000-0002-3444-0392
Kathya Jovel Ruiz9Faculty of Nursing Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, Edmonton, AB T6G 1C9 Canada.
Jenny Ploeg2Aging, Community and Health Research Unit, School of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON L8S 4K1 Canada.
Carrie McAiney3School of Public Health and Health Systems, Schlegel Research Chair in Dementia, Schlegel-UW Research Institute for Aging, University of Waterloo, 200 University Avenue West, Waterloo, ON N2l 3G1 Canada.
Shelley Peacock4College of Nursing, University of Saskatchewan, 4340 E-wing Health Sciences104 Clinic Place, Saskatoon, SK S7N 2Z4 Canada.
Cheryl Nekolaichuk5Division of Palliative Care Medicine, University of Alberta, c/o Palliative Institute, 404, Health Services Centre, 1090 Youville Drive West, Edmonton, AB T6L 0A3 Canada.
Jayna Holroyd-Leduc6Section of Geriatric Medicine, Cumming School of Medicine, Brenda Strafford Foundation Chair of Geriatric Medicine, University of Calgary, 1403 29th Street NW, Calgary, AB T2N 2T9 Canada.
Sunita Ghosh7Department of Medical Oncology/Department of Mathematical and Statistical Sciences, University of Alberta, 11560 University Avenue, Edmonton, AB T6G 1Z2 Canada.
Kevin Brazil8School of Nursing and Midwifery, Queen's University Belfast, 97 Lisburn Road, Belfast, BT9 7BL UK.
Jennifer Swindle9Faculty of Nursing Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, Edmonton, AB T6G 1C9 Canada.
Dorothy Forbes10Arthur Labatt Family School of Nursing, Western University, London, ON N6A 5B9 Canada.
Sandra Woodhead Lyons11Institute for Continuing Care Education and Research (ICCER), 4-023 Edmonton Clinic Health Academy, University of Alberta, 11405 - 87 Avenue NW, Edmonton, AB T6G 1C9 Canada.
Jasneet Parmar12Department of Family Medicine University of Alberta, CH Network of Excellence in Seniors' Health and Wellness, Home Living and Transitions, AHS EZ Continuing Care, c/o Grey Nuns Community Hospital, 416 St. Marguerite Health Services Centre, 1090 Youville Drive West, Edmonton, AB T6L 0A3 Canada.
Sharon Kaasalainen13School of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON L8S 4K1 Canada.
Laura Cottrell9Faculty of Nursing Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, Edmonton, AB T6G 1C9 Canada.
Jillian Paragg9Faculty of Nursing Level 3, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Avenue, Edmonton, AB T6G 1C9 Canada.
University of Alberta · CAAlberta Health Services · CAMcMaster University · CAGrey Nuns Community Hospital · CAQueen's University Belfast · GBSaskatchewan Health Authority · CAUniversity of Calgary · CAUniversity of Waterloo · CAWestern University · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFollowing institutionalization of a relative with Alzheimer disease and related dementias (ADRD), family carers continue to provide care. They must learn to negotiate with staff and navigate the system all of which can affect their mental health. A web-based intervention, My Tools 4 Care-In Care (MT4C-In Care) was developed by the research team to aid carers through the transitions experienced when their relative/friend with ADRD resides in a long-term care (LTC) facility. The purpose of this study was to evaluate MT4C-In Care for feasibility, acceptability, ease of use, and satisfaction, along with its potential to help decrease carer's feelings of grief and improve their hope, general self-efficacy, and health-related quality of life.

methodsThe study was a mixed-methods single-arm repeated measures feasibility study. Participants accessed MT4C-In Care over a 2-month period. Data were collected at baseline and 1 and 2 months. Using a checklist, participants evaluated MT4C-In Care for ease of use, feasibility, acceptability, and satisfaction. Measures were also used to assess the effectiveness of the MT4C-In Care in improving hope (Herth Hope Index), general self-efficacy (GSES), loss and grief (NDRGEI), and health-related quality of life (SF12v2) of participants. Qualitative data were collected at 2 months and informed quantitative findings.

resultsThe majority of the 37 participants were female (65%; 24/37), married (73%; 27/37), and had a mean age of 63.24 years (SD = 11.68). Participants reported that MT4C-In Care was easy to use, feasible, and acceptable. Repeated measures ANOVA identified a statistically significant increase over time in participants hope scores (

conclusionMT4C-In Care is feasible, acceptable, and easy to use and shows promise to help carers of family members with ADRD residing in LTC increase their hope and decrease their grief. This study provides the foundation for a future pragmatic trial to determine the efficacy of MT4C-In Care.

trial registrationClinicalTrials.gov NCT03571165. June 30, 2018 (retrospectively registered).

Indexed as

DementiaFamily carersGriefHopeLong-term careQuality of lifeSelf-efficacyWeb-based intervention

Identifiers

PMID30410783
PMCPMC6208108
OpenAlexW2899451693

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.