ArticleJournal of palliative medicine2019
The Experience of Being Aware of Disease Status in Women with Recurrent Ovarian Cancer: A Phenomenological Study.
Article in Journal of palliative medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed, 21 citations in OpenAlex.
- Article
- Validation of a Novel Dietary Knowledge and Needs Questionnaire: The Postoperative Colorectal Cancer TCM Diet Questionnaire (PCRC-TDQ).Patient preference and adherence · 2026Article
- 'We think differently, we learn differently, but at the end of the day we're not that different': Strengths-based approaches in high school from the perspectives of autistic adolescents.Autism : the international journal of research and practice · 2025Article
- Article
- 'They just told me to go to theatre': women's experiences and support needs following emergency caesarean section in Kawempe National referral hospital, Uganda.BMC pregnancy and childbirth · 2025Article
- Clinical Instructors' Perspectives on the Assessment of Clinical Knowledge of Undergraduate Nursing Students: A Descriptive Phenomenological Approach.Healthcare (Basel, Switzerland) · 2023Article
- Awareness of Disease Status Among Patients With Cancer: An Integrative Review.Cancer nursing · 2023Article
- Mental health challenges experienced by LGBTI+ community in Gaborone: A phenomenological study.Health SA = SA Gesondheid · 2023Article
- Psychosocial Aspects of Living Long Term with Advanced Cancer and Ongoing Systemic Treatment: A Scoping Review.Cancers · 2022Article
- Barriers to Type 2 Diabetes Management Among Older Adult Haitian Immigrants.The science of diabetes self-management and care · 2021Article
Corrections and comments
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Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundAwareness of disease status has been identified as a factor in the treatment decision-making process. Women with recurrent ovarian cancer are facing the challenge of making treatment decisions throughout the disease trajectory. It is not understood how women with ovarian cancer perceive their disease and subsequently make treatment decisions. PURPOSE: The purpose of this phenomenological study was to understand the lived experience of women with recurrent ovarian cancer, how they understood their disease and made their treatment decisions.
methodsA qualitative design with a descriptive phenomenological method was used to conduct 2 in-depth interviews with 12 women (n = 24 interviews). Each interview was ∼60 minutes and was digitally recorded and professionally transcribed. Data collection focused on patients' understanding of their disease and how patients participated in treatment decisions. A modified version of Colaizzi's method of phenomenological reduction guided data analysis.
resultsThree themes emerged to describe the phenomenon of being aware of disease status: (1) perceiving recurrent ovarian cancer as a chronic illness, (2) perceived inability to make treatment decisions, and (3) enduring emotional distress. CONCLUSIONS AND IMPLICATIONS: This study revealed how 12 women conceptualized recurrent ovarian cancer as a chronic disease and their perceived inability to make treatment decisions because of lack of information and professional qualifications, resulting in enduring emotional distress. Future research should replicate the study to confirm the persistence of the themes for racially, ethnically, and religiously diverse patient samples and to improve understanding of awareness of disease status and decision-making processes of patients.
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