ArticleInternational journal of bipolar disorders2018
The challenges of living with bipolar disorder: a qualitative study of the implications for health care and research.
Article in International journal of bipolar disorders, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Exploring the Personal Recovery Construct in Bipolar Disorders: Definition, Usage and Measurement. A Systematic Review.Frontiers in psychiatry · 2022Pooled it
- Alignment of Lived Experience Questions with the Medical Literature in Bipolar Disorder: A Topic Modelling Approach: Adéquation entre les questions relatives à l'expérience vécue et la littérature médicale concernant le trouble bipolaire : Une approche de modélisation de sujets.Canadian journal of psychiatry. Revue canadienne de psychiatrie · 2026Article
- Parental Bipolar Symptoms and Identity Development in Emerging Adults: The Mediating Role of Parental Attachment.Behavioral sciences (Basel, Switzerland) · 2026Article
- Mental Health Experiences Among Undergraduate Nursing Students in a New Zealand Tertiary Institution: A Time for Change.International journal of mental health nursing · 2025Article
- Prodromal symptoms of a first manic episode: a qualitative study to the perspectives of patients with bipolar disorder and their caregivers'.International journal of bipolar disorders · 2024Article
- A grounded theory on acceptance of diagnosis as a pathway to recovery in bipolar disorder.Scientific reports · 2024Article
- On being and having: a qualitative study of self-perceptions in bipolar disorder.Frontiers in psychiatry · 2024Article
- Experiences that matter in bipolar disorder: a qualitative study using the capability, comfort and calm framework.International journal of bipolar disorders · 2023Article
- Perceived public stigma and perceived public exposure by persons living with bipolar disorder: A qualitative study.The International journal of social psychiatry · 2023Article
- A Web-Based Positive Psychology App for Patients With Bipolar Disorder: Development Study.JMIR formative research · 2022Article
- Believing processes during the COVID-19 pandemic in individuals with bipolar disorder: An exploratory study.World journal of psychiatry · 2022Article
- Care burden dimensions of informal caregivers having patients with bipolar disorder (challenges and alternatives) (qualitative study).Journal of education and health promotion · 2021Article
- Employability of Persons With Mental Disability: Understanding Lived Experiences in Kenya.Frontiers in psychiatry · 2019Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIn mental health care, clinical practice is often based on the best available research evidence. However, research findings are difficult to apply to clinical practice, resulting in an implementation gap. To bridge the gap between research and clinical practice, patients' perspectives should be used in health care and research. This study aimed to understand the challenges people with bipolar disorder (BD) experience and examine what these challenges imply for health care and research needs.
methodsTwo qualitative studies were used, one to formulate research needs and another to formulate healthcare needs. In both studies focus group discussions were conducted with patients to explore their challenges in living with BD and associated needs, focusing on the themes diagnosis, treatment and recovery.
resultsPatients' needs are clustered in 'disorder-specific' and 'generic' needs. Specific needs concern preventing late or incorrect diagnosis, support in search for individualized treatment and supporting clinical, functional, social and personal recovery. Generic needs concern health professionals, communication and the healthcare system.
conclusionPatients with BD address disorder-specific and generic healthcare and research needs. This indicates that disorder-specific treatment guidelines address only in part the needs of patients in everyday clinical practice.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.