ArticleBMJ paediatrics open2018
Parent, patient and clinician perceptions of outcomes during and following neonatal care: a systematic review of qualitative research.
Article in BMJ paediatrics open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- School-age outcomes of children after perinatal brain injury: a systematic review and meta-analysis.BMJ paediatrics open · 2023Pooled it
- Core outcomes in neonatology: development of a core outcome set for neonatal research.Archives of disease in childhood. Fetal and neonatal edition · 2020Pooled it
- Pooled it
- Parents' perspectives on the use of statistics to convey uncertainty in the NICU: a qualitative analysis.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Article
- What matters most to people living with epilepsy? A rapid review of qualitative research relating to health outcomes.Epilepsia · 2025Review
- Research priorities for the most premature babies born <25 weeks' gestation: results of an international priority setting partnership.Archives of disease in childhood. Fetal and neonatal edition · 2025Article
- Prophylactic low-dose hydrocortisone in neonates born extremely preterm: current knowledge and future challenges.Pediatric research · 2025Review
- Associations among positive child health measures in the environmental influences on child health outcomes (ECHO) cohort.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Parental Experiences of Neonatal Care: A Nationwide Study on Determinants of Excellence.Neonatology · 2024Article
- Opportunities and Challenges of Prognostic Models for Extremely Preterm Infants.Children (Basel, Switzerland) · 2023Article
- Ranking Future Outcomes Most Important to Parents of Children with Bronchopulmonary Dysplasia.The Journal of pediatrics · 2023Review
- Parental experiences in neonatal intensive care unit in Ethiopia: a phenomenological study.Annals of medicine · 2022Article
- Perinatal excellence to reduce injury in preterm birth (PERIPrem) through quality improvement.BMJ open quality · 2022Article
- Core outcomes in neonatal encephalopathy: a qualitative study with parents.BMJ paediatrics open · 2022Article
- Longitudinal medical needs for periviable NICU survivors.Early human development · 2022Article
- Neurodevelopmental outcomes at age 5 among children born preterm: EPIPAGE-2 cohort study.BMJ (Clinical research ed.) · 2021Article
- Parent priorities for research and communication concerning childhood outcomes following preterm birth.Wellcome open research · 2021Article
- Parents' perceptions of core outcomes in neonatal research in two Nigerian neonatal units.BMJ paediatrics open · 2020Article
- Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectiveMultiple outcomes can be measured in infants that receive neonatal care. It is unknown whether outcomes of importance to parents and patients differ from those of health professionals. Our objective was to systematically map neonatal care outcomes discussed in qualitative research by patients, parents and healthcare professionals and test whether the frequency with which outcomes are discussed differs between groups.
designSystematic review of qualitative literature. The following databases were searched: Medline, CINAHL, EMBASE, PsycINFO and ASSIA from 1997 to 2017. Publications describing qualitative data relating to neonatal care outcomes, reported by former patients, parents or healthcare professionals, were included. Narrative text was analysed and outcomes grouped thematically by organ system. Permutation testing was applied to assess an association between the outcomes identified and stakeholder group.
resultsSixty-two papers containing the views of over 4100 stakeholders were identified; 146 discrete outcomes were discussed; 58 outcomes related to organ systems and 88 to other more global domains. Permutation testing provides evidence that parents, former patients and health professionals reported outcomes with different frequencies (p=0.037).
conclusionsParents, patients and health professionals focus on different outcomes when discussing their experience of neonatal care. A wide range of neonatal care outcomes are reported in qualitative research; many are global outcomes relating to the overall status of the infant. The views of former patients and parents should be taken into consideration when designing research; the development of a core outcomes set for neonatal research will facilitate this.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.