Evidence map›Paper›PMID 30394796›Full record

ArticleAutism : the international journal of research and practice2019

Parent and professional perspectives on behavioral inflexibility in autism spectrum disorders: A qualitative study.

Chetna Sethi, Clare Harrop, Wanqing Zhang, Jill Pritchett, Allison Whitten, Brian A Boyd

Abstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Development of the Behavioral Inflexibility Scale for Children with Autism Spectrum Disorder and Other Developmental Disabilities.Autism research : official journal of the International Society for Autism Research · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Chetna Sethi1 Towson University, USA.
Clare Harrop2 The University of North Carolina at Chapel Hill, USA.ORCID 0000-0003-3381-3473
Wanqing Zhang2 The University of North Carolina at Chapel Hill, USA.
Jill Pritchett3 The Ohio State University, USA.
Allison Whitten4 Vanderbilt University, USA.
Brian A Boyd5 The University of Kansas, USA.

Funding

UNC MRDD Research CenterP30HD003110 · NICHD · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BELGER, AYSENIL · 1985 to 2012
$28.7M
Behavioral Inflexibility in IDD Outcome MeasurementR01HD082127 · NICHD · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BOYD, BRIAN ANTONIO · 2015 to 2019
$2.8M
NICHD NIH HHS P30 HD003110NICHD NIH HHS R01 HD082127
6 · The paper itself

Abstract

Restricted and repetitive behaviors are a core feature of autism spectrum disorder; however, research on the functional impact of these behaviors on the quality of life for individuals with autism spectrum disorder and their families remains scarce. We conducted focus groups with parents of children with autism spectrum disorder and clinicians in order to better characterize the functional impact of behavioral inflexibility, which represents one potential dimensional construct that could account for the breadth of behaviors comprising the restricted and repetitive behavior domain. Transcripts of the focus groups were analyzed using qualitative analysis coding methods to determine parent and clinician beliefs on a range of issues related to behavioral inflexibility including overall impact, types of child behaviors, and strategies for managing behavioral inflexibility. Thematic analysis revealed that parents and clinicians view behavioral inflexibility as an important behavior that impacts multiple areas of functioning, relates to other restricted and repetitive behaviors as well as social communication behaviors, and warrants targeted treatment. Notably, many parents and clinicians emphasized some positive consequences of behavioral inflexibility as well. These findings add crucial insights into the functional impact of behavioral inflexibility and restricted and repetitive behaviors as a whole and suggest that behavioral inflexibility represents an important avenue for future research.

Indexed as

Attitude of Health PersonnelAttitude to HealthParentsStereotyped BehaviorAdolescentAdultAutism Spectrum DisorderBehavior TherapyChildChild, PreschoolCompulsive BehaviorFemaleFocus GroupsHealth PersonnelHumansMaleautism spectrum disordersbehavioral inflexibilityfamily functioning and supportqualitative researchrepetitive behaviors and interests

Identifiers

PMID30394796
PMCPMC6499719

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.