ArticleBirth defects research2018
Population-based surveillance of congenital heart defects among adolescents and adults: surveillance methodology.
Article in Birth defects research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
38 citing papers in PubMed.
- Using administrative healthcare databases to estimate the prevalence of spina bifida across the lifespan: Challenges and opportunities.Developmental medicine and child neurology · 2026Article
- Racial and Ethnic Differences in Healthcare Access and Utilization Among Adults With Congenital Heart Defects in the Congenital Heart Survey to Recognize Outcomes, Needs and Well-Being (CH STRONG).Birth defects research · 2026Article
- Health Care Utilization in Adults With Congenital Heart Disease: Population-Based Findings.Birth defects research · 2026Article
- Racial and Educational Isolation are Associated with Worse Outcomes in Congenital Heart Disease.Pediatric cardiology · 2026Article
- Comorbidities in Adolescents With Congenital Heart Disease: A Population-based Study.Pediatrics open science · 2025Article
- Comorbidity and Multimorbidity in Adults With Congenital Heart Disease: Findings From a Multi-Site Population-Based Study.Birth defects research · 2025Article
- Machine Learning and Natural Language Processing to Improve Classification of Atrial Septal Defects in Electronic Health Records.Birth defects research · 2025Article
- Cardiovascular disease risk factors in congenital heart disease survivors are associated with heart failure.Pediatric research · 2025Article
- Comorbidities and Healthcare Utilization Among Young Adults With Congenital Heart Defects by Down Syndrome Status-Congenital Heart Survey to Recognize Outcomes, Needs, and wellbeinG, 2016-2019.Birth defects research · 2025Article
- Evaluating Long-Term Outcomes of Children Undergoing Surgical Treatment for Congenital Heart Disease for National Audit in England and Wales.Journal of the American Heart Association · 2024Article
- Incidence and Predictors of Stroke in Australian Adults With Congenital Heart Disease (2000-2017).Journal of the American Heart Association · 2024Article
- Positive Predictive Value ofJournal of the American Heart Association · 2023Article
- Survival From Birth Until Young Adulthood Among Individuals With Congenital Heart Defects: CH STRONG.Circulation · 2023Article
- Reproductive Health of Women with Congenital Heart Defects.Journal of women's health (2002) · 2023Review
- Real-world data for precision public health of noncommunicable diseases: a scoping review.BMC public health · 2022Article
- How Well DoJournal of the American Heart Association · 2022Article
- Early-onset dementia among privately-insured adults with and without congenital heart defects in the United States, 2015-2017.International journal of cardiology · 2022Article
- Born to Age: When Adult Congenital Heart Disease Converges With Geroscience.JACC. Advances · 2022Review
- Post-traumatic stress disorder, anxiety, and depression among adults with congenital heart defects.Birth defects research · 2022Article
- Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida.Birth defects research · 2022Article
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
backgroundImproved treatment of congenital heart defects (CHDs) has increased survival of persons with CHDs; however, no U.S. population-based systems exist to assess prevalence, healthcare utilization, or longer-term outcomes among adolescents and adults with CHDs.
methodsNovel approaches identified individuals aged 11-64 years who received healthcare with ICD-9-CM codes for CHDs at three sites: Emory University in Atlanta, Georgia (EU), Massachusetts Department of Public Health (MA), New York State Department of Health (NY) between January 1, 2008 (2009 for MA) and December 31, 2010. Case-finding sources included outpatient clinics; Medicaid and other claims data; and hospital inpatient, outpatient, and emergency visit data. Supplemental information came from state vital records (EU, MA), and birth defects registries (EU, NY). Demographics and diagnostic and procedural codes were linked, de-duplicated, and shared in a de-identified dataset. Cases were categorized into one of five mutually exclusive CHD severity groups; non-cardiac comorbidity codes were grouped into broad categories.
results73,112 individuals with CHD codes in healthcare encounters were identified. Primary data source type varied: clinics (EU, NY for adolescents), claims (MA), hospital (NY for adults). There was a high rate of missing data for some variables and data varied in format and quality. Some diagnostic codes had poor specificity for CHD ascertainment.
conclusionsTo our knowledge, this is the first population-based, multi-site CHD surveillance among adolescents and adults in the U.S. Identification of people living with CHDs through healthcare encounters using multiple data sources was feasible, though data quality varied and linkage/de-duplication was labor-intensive.
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