Evidence map›Paper›PMID 30394570›Full record

ArticleAmerican journal of hematology2019

Validation of a patient-reported outcomes symptom measure for patients with nontransfusion-dependent thalassemia (NTDT-PRO

Ali Taher, Maria Domenica Cappellini, Vip Viprakasit, Pranee Sutcharitchan, Dalia Mahmoud, Abderrahmane Laadem, Anzalee Khan, Chad Gwaltney, Gale Harding, Kenneth Attie and 5 more

Abstract readMulticenter StudyValidation Study
In one paragraph

Article in American journal of hematology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Trial
  2. Trial
  3. Article
  4. Article
  5. Review
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Ali TaherAmerican University of Beirut Medical Center, Beirut, Lebanon.ORCID 0000-0001-8515-2238
Maria Domenica CappelliniOspedale Maggiore Policlinico IRCCS, University of Milan, Milan, Italy.ORCID 0000-0001-8676-6864
Vip ViprakasitSiriraj Hospital, Mahidol University, Bangkok, Thailand.
Pranee SutcharitchanChulalongkorn University, Bangkok, Thailand.
Dalia MahmoudCelgene Corporation, Summit, New Jersey.
Abderrahmane LaademCelgene Corporation, Summit, New Jersey.
Anzalee KhanNathan S. Kline Institute for Psychiatric Research, Orangeburg, New York.
Chad GwaltneyERT, Philadelphia, Pennsylvania.
Gale HardingEvidera, Bethesda, Maryland.
Kenneth AttieAcceleron Pharma, Cambridge, Massachusetts.
Xiaosha ZhangAcceleron Pharma, Cambridge, Massachusetts.
Jun ZouCelgene Corporation, Summit, New Jersey.
Joseph PariseauCelgene Corporation, Summit, New Jersey.
X Henry HuCelgene Corporation, Summit, New Jersey.
Antonis KattamisAghia Sophia Children's Hospital, Athens, Greece.

Funding

Celgene
6 · The paper itself

Abstract

This study demonstrates the quantitative characteristics of the first patient-reported outcome (PRO) tool developed for patients with nontransfusion-dependent β-thalassemia (NTDT), the NTDT-PRO

Indexed as

Patient Reported Outcome MeasuresAdolescentAdultbeta-ThalassemiaDyspneaFatigueFemaleHumansLongitudinal StudiesMaleMiddle AgedQuality of LifeYoung Adult

Identifiers

PMID30394570
PMCPMC6587834

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.