ArticlePediatrics2018
Supporting Family Decision-making for a Child Who Is Seriously Ill: Creating Synchrony and Connection.
Article in Pediatrics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed.
- Parents Value Shared Decision-Making and Sensitive Communication During End-of-Life Care in Neonatal Intensive Care: An Exploratory Study.Acta paediatrica (Oslo, Norway : 1992) · 2026Observational
- Moving toward meaningful shared decision-making in neonatal care: clinical practice and policy implications in Korea.Clinical and experimental pediatrics · 2026Article
- Human artificial placenta technology-trials: counselling and informed consent using healthcare professionals' and parental perspectives.Pediatric research · 2025Article
- "The American journal of hospice & palliative care · 2025Article
- 'Being a Good Parent' for Seriously Ill Children in Brazil: A Qualitative Semantic Analysis.Nursing in critical care · 2025Article
- Characteristics of child development in the context of serious illness: a scoping review.BMC palliative care · 2025Article
- Navigating the Healthcare System with a Complex Chronic Condition: Multidimensional Roles of Adolescents, Young Adults, and Parents.Children (Basel, Switzerland) · 2025Article
- Article
- Exploring professionals' views regarding prenatal counselling in congenital diaphragmatic hernia.Journal of perinatal medicine · 2023Article
- Seminars in Fetal & neonatal medicine: Palliative and end of life care in the NICU.Seminars in fetal & neonatal medicine · 2023Review
- Shared decision-making for children with medical complexity in community health services: a scoping review.BMJ paediatrics open · 2023Article
- Perioperative Care of Children with Severe Neurological Impairment and Neuromuscular Scoliosis-Journal of clinical medicine · 2022Review
- Catholic Perspective on Decision-Making for Critically Ill Newborns and Infants.Children (Basel, Switzerland) · 2022Article
- Ethical and legal considerations related to disorders of consciousness.Current opinion in pediatrics · 2020Review
- The Effect of FAmily-CEntered (FACEJournal of family nursing · 2020Article
- Pediatric Chronic Critical Illness: Let Us Focus on the Big Picture.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
The families of children with chronic or serious illness are sometimes faced with difficult decisions never previously imagined. We offer a stepwise approach in building a human connection with these families to support them through the decision-making process. We encourage the clinician to stop talking and to actively listen and find common ground. We suggest that offering open and honest information begins with an invitation. We encourage clinicians to explore concepts with the family, including their fears and hopes. We discuss nurturing an emotional connection between the child and family and describe ways to discover a family's preference for involvement in the decision-making process. Central to supporting a family is to place infinite value on the life of their child. We argue that attention to these matters will help the clinician remain in sync with the family to ensure meaningful and high-quality decision-making during highly vulnerable times for families.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.