Evidence map›Paper›PMID 30385437›Full record

Observational studyBMJ open2018

What information needs do people with recently diagnosed diabetes mellitus have and what are the associated factors? A cross-sectional study in Germany.

Sandra Grobosch, Silke Kuske, Ute Linnenkamp, Nicole Ernstmann, Astrid Stephan, Jutta Genz, Alexander Begun, Burkhard Haastert, Julia Szendroedi, Karsten Müssig and 4 more

Registry-linked trialAbstract readObservational Study
In one paragraph

Observational study in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01055093 (Prospective Study on Diabetes Mellitus and Its Complications in Newly Diagnosed Adult Patients), which is not on this map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01055093 recruitingnot on this map

Prospective Study on Diabetes Mellitus and Its Complications in Newly Diagnosed Adult Patients

TypeobservationalSponsorGerman Diabetes CenterRan2005 to 2040Enrolled2,000ConditionsDiabetes Mellitus, Type 1, Diabetes Mellitus, Type 2
3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Dear Health Care Professional: What People Need and Want When Diagnosed With Type 2 Diabetes.Clinical diabetes : a publication of the American Diabetes Association · 2025
    Article
  2. Assessing patient information needs for new antidiabetic medications to inform shared decision-making: A best-worst scaling experiment in China.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. What Individuals Want to Hear at the Point of Type 2 Diabetes Diagnosis.Clinical diabetes : a publication of the American Diabetes Association · 2022
    Article
  8. Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Sandra GroboschInstitute for Health Services Research and Health Economics, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany.ORCID 0000-0001-5843-0730
Silke KuskeInstitute for Health Services Research and Health Economics, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Ute LinnenkampInstitute for Health Services Research and Health Economics, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Nicole ErnstmannDepartment for Psychosomatic Medicine and Psychotherapy, Center for Health Communication and Health Services Research, University Hospital of Bonn, Bonn, Germany.
Astrid StephanInstitute for Health Services Research and Health Economics, Centre for Health and Society, Faculty of Medicine, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Jutta GenzInstitute for Health Services Research and Health Economics, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Alexander BegunInstitute for Health Services Research and Health Economics, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Burkhard HaastertInstitute for Health Services Research and Health Economics, Centre for Health and Society, Faculty of Medicine, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Julia SzendroediGerman Center for Diabetes Research (DZD), München-Neuherberg, Germany.
Karsten MüssigGerman Center for Diabetes Research (DZD), München-Neuherberg, Germany.
Volker BurkartGerman Center for Diabetes Research (DZD), München-Neuherberg, Germany.
Michael RodenGerman Center for Diabetes Research (DZD), München-Neuherberg, Germany.
Andrea IcksInstitute for Health Services Research and Health Economics, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
GDS Group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesThis study aimed to identify: (1) information needs of people with recently diagnosed type 1 or type 2 diabetes mellitus (DM); (2) information needs within different subgroups; and (3) factors associated with information needs concerning DM such as current level of information, health-related quality of life or participation preferences.

designA mixed-method approach combining quantitative and qualitative methods was used. Information needs for different topics and estimated associated factors were described using logistic regression models. Additionally, a qualitative content analysis was performed.

settingMonocentre study.

participantsInformation needs were assessed and analysed in 138 consecutive participants with DM who took part in the German Diabetes Study (54% type 2 diabetes, 64% male, mean age 46.3±12.3 years, known diabetes duration <1 year).

resultsMost participants displayed a need for information in all topics provided, especially in diabetes research (86%) and treatment/therapy (80%). Regarding those topics, participants wished for information regarding new treatments that simplify their everyday life. In general, participants preferred topics that focus on the management or handling of DM over topics related to clinical factors of DM, such as causes and complications. A low current level of information and treatment with antihyperglycaemic medication were significantly associated with higher information needs, and diabetes-related comorbidity and higher mental component summary score in the 36-Item Short-Form Health Survey (SF-36) with lower information needs.

conclusionPeople with recently diagnosed DM display high information needs, which differ according to the current level of information, mode of diabetes treatment, diabetes-related comorbidity and mental component summary score in the SF-36. There appears to be a preference for information, which can help to simplify life with diabetes and for information that corresponds to their level of knowledge. This should be considered in patient information activities. TRIAL REGISTRATION NUMBER: NCT01055093.

Indexed as

Needs AssessmentPatient Education as TopicAdultComorbidityCross-Sectional StudiesDiabetes Mellitus, Type 1Diabetes Mellitus, Type 2FemaleGermanyHealth Services Needs and DemandHumansLogistic ModelsMaleMiddle AgedQuality of LifeRisk Factorsgerman diabetes studyinformation needspatient-centred carerecently diagnosed diabetes mellitus

Identifiers

PMID30385437
PMCPMC6252653

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.