Evidence map›Paper›PMID 30382835›Full record

ArticleBMC palliative care2018

A public health approach to palliative care in the response to drug resistant TB: an ethnographic study in Bengaluru, India.

Joseph M Sawyer, Rahul Asgr, Florence N Todd Fordham, John D H Porter

Open access · goldAbstract read
In one paragraph

Article in BMC palliative care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.4field-weighted citation impact, top 37% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 6 citations in OpenAlex.

  1. Hospice care in India: A review.Journal of family medicine and primary care · 2022
    Review
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 2 countries.

Joseph M SawyerMarie Curie Palliative Care Research Department, UCL, 6th Floor, Wing B, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK. joseph.sawyer@ucl.ac.uk.ORCID http://orcid.org/0000-0002-7931-9967
Rahul AsgrSociety for Community Health Awareness Research and Action, Public Health, Bengaluru, Karnataka, India.
Florence N Todd FordhamMarie Curie Palliative Care Research Department, UCL, 6th Floor, Wing B, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
John D H PorterDepartments of Clinical Research and Global Health and Development, London School of Hygiene and Tropical Medicine, Keppel Street, London, WC1E 7HT, UK.
University College London · GBSociety for Community Health Awareness Research and Action · INUniversity of London · GB

Funding

London School of Hygiene and Tropical Medicine N/AMarie Curie MCCC-FCO-11-UMarie Curie N/A
6 · The paper itself

Abstract

backgroundThe treatment of Multidrug-Resistant Tuberculosis represents one of the most significant challenges to global health. Despite guidance on improving treatment outcomes, there is little focus on how to support individuals in their suffering. Palliative care is therefore proposed as a necessary component in the global strategy to fight Tuberculosis. We aim to describe the informal resources and networks available to persons affected by Multidrug-Resistant Tuberculosis, how they are accessed and how they are integrated into everyday lives.

methodsIn-depth ethnographic research was conducted in Bengaluru, India. Informal interactions and observations were recorded across a range of palliative care and tuberculosis treatment providers over a month-long period. In addition, ten individuals with Multidrug-Resistant Tuberculosis were asked for in-depth interviews, and five agreed.

resultsMultidrug-Resistant Tuberculosis caused a dynamic chain of events that transgress through physical and psychological domains to cause human suffering. Participants utilised support from their family and friends to build a network of care that was of therapeutic benefit. Informal care networks were similar to the holistic model of care practice by specialist palliative care services and represent an underused resource with enormous potential.

conclusionPatient suffering is poorly addressed in current Tuberculosis treatment programmes. A community-based palliative care approach may extend peoples' support networks, helping to alleviate suffering. Further research on existing support structures and integration of these services into Tuberculosis control programmes is required.

Indexed as

Anthropology, CulturalPublic HealthAdultDecision MakingFemaleHumansIndiaMaleMiddle AgedPalliative CareQualitative ResearchQuality of LifeReligionSocial SupportSocioeconomic FactorsTuberculosis, Multidrug-ResistantDrug resistanceMDR-TBPalliative careSufferingTB

Identifiers

PMID30382835
PMCPMC6211508
OpenAlexW2899201060

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.