SynthesisHealth expectations : an international journal of public participation in health care and health policy2019
Current trends in patient and public involvement in cancer research: A systematic review.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 80 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
80 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Evaluation of research co-design in health: a systematic overview of reviews and development of a framework.Implementation science : IS · 2024Pooled it
- Recruitment rates and strategies in exercise trials in cancer survivorship: a systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- A Systematic Review of Patient and Public Involvement (PPI) in Bariatric Research Trials: The Need for More Work.Obesity surgery · 2022Pooled it
- Financial relationships between patient and consumer representatives and the health industry: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2020Pooled it
- Current trends in patient and public involvement in cancer research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Evaluating Meaningful Patient and Public Involvement in Intensive Care Research-A PEIRS-22 Survey.Nursing in critical care · 2026Article
- Developing best practices for engaging and involving palliative care patients in research in sub-Saharan Africa.Research involvement and engagement · 2026Article
- Bridging Lived and Expert Experience: A Qualitative Study Exploring Lived-Experience Experts' and Researchers' Experiences of Public Engagement in Cancer Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Embedding Consumer-Led Research in a Comprehensive Cancer Centre Alliance: A Mixed-Methods Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The Professional-Volunteer Paradox: Transforming Lived Experience into a Sense of Purpose in Dutch Oncology Patient Advocacy.The patient · 2026Article
- Patients' experiences and attitudes toward the use of real-time artificial intelligence-assisted colonoscopy.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2026Article
- What added value does Patient and Public Involvement (PPI) in oncology research bring to cancer patients and what are the challenges in realizing it? A mixed-methods cross-sectional study in four PPI groups in Flanders (Belgium).Research involvement and engagement · 2026Article
- Navigating Long-Term Co-Creative Research With Young Adults Diagnosed With Cancer: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Embedding Patient and Public Engagement in a Cancer Project: Protocol for a Qualitative Study.JMIR research protocols · 2026Article
- Health promotion research involving older adults in the Nordic countries: a scoping review of doctoral theses.Primary health care research & development · 2026Article
- Public and Patient Involvement and Engagement in Clinical Trials: A Multi-Perspective Mixed-Methods Evaluation of the ROWTATE Programme.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- From input to impact: embedding PPI in computational ovarian cancer research.Research involvement and engagement · 2026Article
- Article
- Experiences of current practice, priorities and strategies for enabling meaningful consumer and community involvement collaborations in health and medical research in Queensland, Australia.Research involvement and engagement · 2026Article
- Co-developing a complex transfer intervention with parents: a case study of involvement and parental experience.Research involvement and engagement · 2026Article
20 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundPatient and public involvement (PPI) in health research is on the rise worldwide. Within cancer research, PPI ensures that the rapid development of medical and technological opportunities for diagnostics, treatment and care corresponds with the needs and priorities of people affected by cancer. An overview of the experiences, outcomes and quality of recent PPI in cancer research would provide valuable information for future research.
objectiveTo describe the current state of PPI in cancer research focusing on the research stages, applied methods, stated purposes and outcomes, and challenges and recommendations.
methodsA search was conducted on PubMed, CINAHL and PsycINFO for literature published from December 2006 to April 2017. Original research studies describing the involvement of cancer patients, stakeholders and carers as active partners at any stage of the research process were included.
resultsTwenty-seven studies were included, the majority reporting PPI at the early stages of research, that is, during the definition and prioritization of research topics and the development of recruitment strategies. Few studies reported PPI at later stages and across the research process. Challenges and recommendations were only briefly described, and critical reflection on the PPI process was lacking.
conclusionPPI needs to be integrated more broadly in the cancer research process. The quality of reporting PPI should be strengthened through greater critical reflections including both positive and negative experiences of the PPI process. This will contribute to the further development of PPI and its potential in cancer research.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.