Evidence map›Paper›PMID 30377800›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019

Do haematological cancer patients get the information they need about their cancer and its treatment? Results of a cross-sectional survey.

Rochelle Watson, Jamie Bryant, Robert Sanson-Fisher, Heidi Turon, Lisa Hyde, Anne Herrmann

Abstract read
PubMed Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
3.4field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 21 citations in OpenAlex.

  1. Article
  2. Heterogeneity and associated factors of information needs among patients with hematological malignancies in China: a latent profile analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  3. Article
  4. Article
  5. Meeting the Information and Support Needs of Blood Cancer Patients and Caregivers: A Longitudinal Study of a Model of Patient-Centered Information Delivery.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021
    Article
  6. Observational
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Rochelle WatsonHealth Behaviour Research Collaborative, School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, W4, HMRI Building, Callaghan, NSW, 2308, Australia.
Jamie BryantHealth Behaviour Research Collaborative, School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, W4, HMRI Building, Callaghan, NSW, 2308, Australia. Jamie.Bryant@newcastle.edu.au.ORCID http://orcid.org/0000-0001-9378-5852
Robert Sanson-FisherHealth Behaviour Research Collaborative, School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, W4, HMRI Building, Callaghan, NSW, 2308, Australia.
Heidi TuronHealth Behaviour Research Collaborative, School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, W4, HMRI Building, Callaghan, NSW, 2308, Australia.
Lisa HydeHealth Behaviour Research Collaborative, School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, W4, HMRI Building, Callaghan, NSW, 2308, Australia.
Anne HerrmannHealth Behaviour Research Collaborative, School of Medicine and Public Health, Faculty of Health and Medicine, University of Newcastle, W4, HMRI Building, Callaghan, NSW, 2308, Australia.
Hunter Medical Research Institute · AU

Funding

MOLECULAR GENETICS OF HUMAN LEUKEMIAS AND LYMPHOMASK08CA001102 · NCI · WISTAR INSTITUTE · PI MEEKER, TIMOTHY C. · 1986 to 1991
–
Australian Research Council Post-Doctoral Industry FellowshipCancer Council NSW CSR 11-02Cancer Institute NSW 10/THS/2-14Department of Education and Training Australian Government Research Training Program ScholarshipFaculty of Health and Medicine, University of Newcastle Australia HCRA Research ScholarshipFaculty of Health and Medicine, University of Newcastle Australia International Postgraduate Research Scholarship
6 · The paper itself

Abstract

purposeTo explore the experiences of haematological cancer outpatients in obtaining information about their cancer and its treatment.

methodsA cross-sectional survey of adult haematological cancer outpatients was conducted. Participants completed two pen-and-paper questionnaires: the first examined demographics and disease characteristics; the second, completed four weeks later, asked about the cancer information received. Participants indicated whether they received the information they needed about medical procedures and self-management, experiences regarding doctor-patient communication, and self-efficacy in seeking information and support. Where possible, items were derived from Australian psychosocial cancer care guidelines.

resultsTwo hundred and ninety-three (84%) patients consented to participate, with 170 (58%) completing both questionnaires. Most participants reported receiving information in accordance with guidelines. Areas identified as requiring improvement included difficulty recalling information (28%); information overload (26%); insufficient opportunity to ask questions (23%); and insufficient information about managing anxiety related to medical procedures (20%).

conclusionWhile many haematological cancer patients report receiving adequate information, there is room for improvement. Implementation of evidence-based strategies, such as decision aids or audiotapes of the consultation, may help to improve information experiences. PRACTICE IMPLICATIONS: A patient-centred approach to information provision is essential for ensuring information addresses the needs and preferences of the patient.

Indexed as

Access to InformationPatient Education as TopicAdolescentAdultAgedAged, 80 and overAustraliaCommunicationCross-Sectional StudiesFemaleHealth Services Needs and DemandHematologic NeoplasmsHumansMaleMiddle AgedPhysician-Patient RelationsCancerCommunicationInformation provisionPatient experiences

Identifiers

PMID30377800
OpenAlexW2898996327

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.