Evidence map›Paper›PMID 30373779›Full record

ArticleBMJ open2018

Using patient-reported outcome measures (PROMs) to promote quality of care in the management of patients with established kidney disease requiring treatment with haemodialysis in the UK (PROM-HD): a qualitative study protocol.

Nicola Elzabeth Anderson, Melanie Calvert, Paul Cockwell, Mary Dutton, Olalekan Lee Aiyegbusi, Derek Kyte

Abstract read
In one paragraph

Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Review
  6. Article
  7. Article
  8. Use of Patient-Reported Data within the Acute Healthcare Context: A Scoping Review.International journal of environmental research and public health · 2022
    Article
  9. Article
  10. Patient-Reported Outcome Measures in Endometriosis.Journal of clinical medicine · 2021
    Review
  11. Observational
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Nicola Elzabeth AndersonCentre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.ORCID 0000-0002-0614-3198
Melanie CalvertCentre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.ORCID 0000-0002-1856-837X
Paul CockwellCentre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
Mary DuttonCentre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
Olalekan Lee AiyegbusiCentre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.
Derek KyteCentre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK.

Funding

Department of Health PDF-2016-09-009
6 · The paper itself

Abstract

introductionPatients undergoing haemodialysis (HD) for end-stage kidney disease often report a poor quality of life (QoL) and identify that improving QoL has a higher priority for them than improvements in long-term survival. Research suggests that regular collection and usage of patient-reported outcome measures (PROMs) in patients with chronic conditions may reduce hospitalisation, improve QoL and overall survival. In the UK, despite increased use within research settings, PROMs have not been introduced into the routine clinical care for patients undergoing HD.We report the protocol for 'Using patient reported outcome measures (PROMs) to promote quality of care in the management of patients with established kidney disease requiring treatment with haemodialysis in the UK-PROM-HD'. The study aim is to investigate the methodological basis for the use of routine PROMs assessment, particularly using electronic formats (ePROMs) within clinical and research settings, to maximise the potential of PROM use in the management of the care of this patient group. METHODS AND ANALYSIS: The project will use qualitative methodology to explore, by thematic analysis, the views, perceptions and experiences of patients receiving HD and members of the HD multidisciplinary team regarding the collection and use of PROMs in routine clinical care, particularly ePROMs. This will involve interviews with up to 30 patients or until saturation is achieved and three focus group sessions with approximately 18 members of the clinical team delivering care to this patient group, which will be interpreted broadly to include both professional and non-professional staff.

Indexed as

Clinical ProtocolsPatient Reported Outcome MeasuresQuality of Health CareRenal DialysisFeasibility StudiesHumansRenal InsufficiencyResearch Designdialysisend stage renal failurequalitative research

Identifiers

PMID30373779
PMCPMC6224733

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.