ArticleJournal of clinical and translational science2018
Delivery of the research participant perception survey through the patient portal.
Article in Journal of clinical and translational science, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed.
- What research participants say about their research experiences in Empowering the Participant Voice: Outcomes and actionable data.Journal of clinical and translational science · 2025Article
- Comparing survey delivery methods in healthcare: A randomized study.Journal of clinical and translational science · 2025Article
- Implementation ofJournal of clinical and translational science · 2024Article
- Empowering the Participant Voice (EPV): Design and implementation of collaborative infrastructure to collect research participant experience feedback at scale.Journal of clinical and translational science · 2024Article
- Fielding the research participant perception survey to evaluate a culturally tailored Latinx cohort study.Journal of clinical and translational science · 2024Article
- Embedding research study recruitment within the patient portal preCheck-in.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Building an infrastructure to support the development, conduct, and reporting of informative clinical studies: The Rockefeller University experience.Journal of clinical and translational science · 2023Article
- Understanding Racial Disparities in COVID-19-Related Complications: Protocol for a Mixed Methods Study.JMIR research protocols · 2022Article
- Research Participants' Perspectives on Using an Electronic Portal for Engagement and Data Collection: Focus Group Results From a Large Epidemiologic Cohort.Journal of medical Internet research · 2020Article
- Article
- Impact of survey length and compensation on validity, reliability, and sample characteristics for Ultrashort-, Short-, and Long-Research Participant Perception Surveys.Journal of clinical and translational science · 2018Article
- Recruitment and Retention for Alzheimer's Disease Diversity Genetic Cohorts in the ADSP (READD-ADSP): A global effort to identify genetic factors in Alzheimer's disease.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
introductionThe patient portal may be an effective method for administering surveys regarding participant research experiences but has not been systematically studied.
methodsWe evaluated 4 methods of delivering a research participant perception survey: mailing, phone, email, and patient portal. Participants of research studies were identified (n=4013) and 800 were randomly selected to receive a survey, 200 for each method. Outcomes included response rate, survey completeness, and cost.
resultsAmong those aged <65 years, response rates did not differ between mail, phone, and patient portal (22%, 29%, 30%,
conclusionsThe patient portal was among the most effective ways to reach research participants, and was less expensive than surveys administered by mail or telephone.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.