Evidence map›Paper›PMID 30367434›Full record

ArticleThe patient2019

Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment.

Sophy Barber, Hilary Bekker, Joachim Marti, Sue Pavitt, Balvinder Khambay, David Meads

Open access · hybridAbstract read
In one paragraph

Article in The patient, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
25citing papers in PubMed, 2 pooled it
7.3field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

25 citing papers in PubMed, 2 syntheses or guidelines pooled it, 37 citations in OpenAlex.

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  20. Patient perspectives regarding gene therapy in haemophilia: Interviews from the PAVING study.Haemophilia : the official journal of the World Federation of Hemophilia · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 2 countries.

Sophy BarberOrthodontic Department, Leeds Dental Institute, Clarendon Way, Leeds, LS2 9LU, UK. sophybarber@nhs.net.ORCID http://orcid.org/0000-0003-2881-6194
Hilary BekkerLeeds Institute of Health Sciences, Level 10 Worsley Building, Clarendon Way, Leeds, LS2 9TJ, UK.
Joachim MartiInstitute of Social and Preventive Medicine (IUMSP), Université de Lausanne-CHUV, Route de la Corniche 10, 1010, Lausanne, Switzerland.
Sue PavittSchool of Dentistry, Level 6 Worsley Building, Clarendon Way, Leeds, LS2 9LU, UK.
Balvinder KhambaySchool of Dentistry, University of Birmingham, 5 Mill Pool Way, Birmingham, B5 7EG, UK.
David MeadsLeeds Institute of Health Sciences, Level 11 Worsley Building, Clarendon Way, Leeds, LS2 9TJ, UK.
University of Leeds · GBInstitute of Social and Preventive Medicine · CHLeeds Dental Hospital · GBUniversity of Birmingham · GB

Funding

National Institute for Health Research DRF-2015-08-052
6 · The paper itself

Abstract

objectiveOur objective was to develop and test a discrete-choice experiment (DCE) survey to elicit adolescent and parent preferences for dental care for hypodontia (a developmental condition where one or more teeth fail to develop).

methodsThis was a mixed-methods study. Participants were adolescents (aged 12-16 years) with hypodontia and their parents and the dentists providing hypodontia care. Stage one entailed attribute development, as follows. (1) Attribute identification: systematic review of hypodontia literature; interviews with adolescents with hypodontia (n = 8) and parents (n = 8); observation of hypodontia clinical consultations (n = 5); environmental scan of hypodontia patient information resources (n = 30); and systematic analysis of social media posts (n = 176). (2) Attribute selection: stakeholder consultation to develop items for a questionnaire; rating and ranking questionnaire for adolescents with hypodontia and parents (n = 18); further stakeholder consultation. Stage two involved the development of the DCE survey, and stage three included the pre-testing using cognitive interviews with adolescents (n = 12) and parents (n = 8) to assess face and content validity.

resultsThe attribute long list included 27 attributes focusing on service delivery and treatment outcome, from which seven 'important' attributes were selected for pre-testing. Cognitive interviewing suggested adolescents found the DCE choice tasks challenging to understand; the survey was modified to enhance its acceptability. One attribute was excluded as it showed poor validity with adolescents. Pre-testing suggested DCE choice tasks encouraged thinking and discussion about preferences for treatment.

conclusionsIncluding the target respondent group in all stages of DCE development ensured the final DCE survey was valid and acceptable. DCE methods appear to be a useful tool for exploring joint decision making alongside conventional preference elicitation.

Indexed as

Choice BehaviorPatient PreferenceAdolescentAnodontiaChildFemaleHumansInterviews as TopicMaleParentsQualitative ResearchSurveys and Questionnaires

Identifiers

PMID30367434
PMCPMC6335368
OpenAlexW2896185867

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.