ArticleF1000Research2018
How to incorporate patient and public perspectives into the design and conduct of research.
Article in F1000Research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 117 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
117 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Evaluating acceptability and experiences of pregnant women at high risk of developing gestational diabetes who take part in antenatal intervention trials: a qualitative systematic review.BMC pregnancy and childbirth · 2025Pooled it
- Impact of digital health interventions on patient satisfaction in outpatient gastrointestinal endoscopy: a systematic review.BMJ open gastroenterology · 2025Pooled it
- Interventions for people with perceptual disorders after stroke: the PIONEER scoping review, Cochrane systematic review and priority setting project.Health technology assessment (Winchester, England) · 2024Pooled it
- Strategies used for childhood chronic functional constipation: the SUCCESS evidence synthesis.Health technology assessment (Winchester, England) · 2024Pooled it
- REPRESENT recommendations: improving inclusion and trust in cancer early detection research.British journal of cancer · 2023Pooled it
- Reporting of PPI and the MCID in phase III/IV randomised controlled trials-a systematic review.Trials · 2023Pooled it
- Trial
- Delivery fidelity of the REACT (REtirement in ACTion) physical activity and behaviour maintenance intervention for community dwelling older people with mobility limitations.BMC public health · 2022Trial
- Recruiting men from across the socioeconomic spectrum via GP registers and community outreach to a weight management feasibility randomised controlled trial.BMC medical research methodology · 2020Trial
- Risk communication in a patient decision aid for radiotherapy in breast cancer: How to deal with uncertainty?Breast (Edinburgh, Scotland) · 2020Trial
- Cystic fibrosis care today-a narrative review based on views of experts, patients and the public.Wiener klinische Wochenschrift · 2026Review
- Involving Parents in Prevention: A Case Example of Research and Intervention Development to Improve Financial Well-Being Support.Journal of prevention (2022) · 2026Article
- Patient-reported outcomes after surgical treatment of spontaneous intracranial hypotension: a cross-sectional study.Acta neurologica Belgica · 2026Article
- 'You've Given Me My Voice'-Enhancing Engagement in Exercise Oncology Research: A Patient and Public Involvement Approach to Co‑Designing a Pre‑Radiotherapy Exercise Programme With People Living With Lung Cancer.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Experiences and Challenges of Patients With Chronic Respiratory Disease During a Virtual Research Study: Qualitative Study.Journal of participatory medicine · 2026Article
- Perception of physiotherapy researchers about patient and public involvement in health research design and planning in Nigeria.BMC health services research · 2026Article
- 'I Want Everyone to Have It, and Everyone to Be on It': A Feasibility Study of the Transforming Long Covid Intervention.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Patient and public involvement in pragmatic trials with older adults: a multi-methods study of researchers' experiences.BMC geriatrics · 2026Article
- Public Involvement in the Evaluation of Local Government Public Health Interventions in the UK: Lessons From PHIRST Insight.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Making space to listen: engaging people with a chronic condition and various health literacy levels as citizen researchers.Research involvement and engagement · 2026Article
57 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research. PPI is defined as research being carried out 'with' or 'by' patients and members of the public rather than 'to', 'about' or 'for' them ( http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants. Ethical considerations also differ. PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination. Occasionally patients lead or do research. The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls. It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.