Evidence map›Paper›PMID 30360959›Full record

ArticleKidney international2018

Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop.

Allison Tong, Braden Manns, Angela Yee Moon Wang, Brenda Hemmelgarn, David C Wheeler, John Gill, Peter Tugwell, Robert Pecoits-Filho, Sally Crowe, Tess Harris and 18 more

Abstract readConference Proceedings
PubMed Full text at PMC Publisher
In one paragraph

Article in Kidney international, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 75 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
75citing papers in PubMed, 6 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

75 citing papers in PubMed, 6 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Heart failure events in randomized controlled trials for adults receiving maintenance dialysis: a meta-epidemiologic study.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2025
    Pooled it
  4. Education programmes for people with chronic kidney disease and diabetes.The Cochrane database of systematic reviews · 2024
    Pooled it
  5. Pooled it
  6. Exercise training for adults undergoing maintenance dialysis.The Cochrane database of systematic reviews · 2022
    Pooled it
  7. Efficacy and safety of daprodustat in patients on peritoneal dialysis in the ASCEND-D trial.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2025
    Trial
  8. Article
  9. Article
  10. Article
  11. A guide to uraemic toxicity.Nature reviews. Nephrology · 2026
    Review
  12. Article
  13. Review
  14. Quality Metrics in Dialysis: A Welcome Change for Vascular Access.Advances in kidney disease and health · 2025
    Review
  15. Review
  16. Article
  17. Article
  18. Testing Interventions that Address Kidney Health Disparities.Journal of the American Society of Nephrology : JASN · 2025
    Article
  19. Prevalence of Severe Mental Illness and Its Associations With Health Outcomes in Patients With CKD: A Swedish Nationwide Study.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2025
    Article
  20. Review

15 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

28 authors.

Allison TongThe University of Sydney School of Public Health, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia. Electronic address: allison.tong@sydney.edu.au.
Braden MannsDepartment of Medicine, Libin Cardiovascular Institute and O'Brien Institute of Public Health, University of Calgary, Calgary, Alberta, Canada; Department of Community Health Sciences, Libin Cardiovascular Institute and O'Brien Institute of Public Health, University of Calgary, Calgary, Alberta, Canada.
Angela Yee Moon WangDepartment of Medicine, Queen Mary Hospital, The University of Hong Kong, Hong Kong.
Brenda HemmelgarnDepartment of Medicine, Libin Cardiovascular Institute and O'Brien Institute of Public Health, University of Calgary, Calgary, Alberta, Canada; Department of Community Health Sciences, Libin Cardiovascular Institute and O'Brien Institute of Public Health, University of Calgary, Calgary, Alberta, Canada.
David C WheelerCentre for Nephrology, University College London, London, UK.
John GillDivision of Nephrology, University of British Columbia, Vancouver, British Columbia, Canada.
Peter TugwellDepartment of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Robert Pecoits-FilhoDepartment of Internal Medicine, School of Medicine, Pontifícia Universidade Católica do Paraná, Brazil.
Sally CroweCrowe Associates Ltd., London, UK.
Tess HarrisPolycystic Kidney Disease International, London, UK.
Wim Van BiesenRenal Division, Ghent University Hospital, Ghent, Belgium.
Wolfgang C WinkelmayerSelzman Institute for Kidney Health, Section of Nephrology, Baylor College of Medicine, Houston, Texas, USA.
Adeera LevinDivision of Nephrology, University of British Columbia, Vancouver, British Columbia, Canada.
Aliza ThompsonDivision of Cardiovascular and Renal Products, Center for Drug Evaluation and Research, United States Food and Drug Administration, Washington, DC, USA.
Vlado PerkovicThe George Institute for Global Health, Sydney, Australia.
Angela JuThe University of Sydney School of Public Health, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.
Talia GutmanThe University of Sydney School of Public Health, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.
Amelie Bernier-JeanThe University of Sydney School of Public Health, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.
Andrea K ViecelliFaculty of Medicine, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia; Centre for Kidney Disease Research, Translational Research Institute, Brisbane, Australia.
Emma O'LoneThe University of Sydney School of Public Health, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.
Jenny ShenDepartment of Nephrology, Los Angeles Biomedical Research Institute at Harbor-University of California, Los Angeles Medical Center, Los Angeles, California, USA.
Michelle A JosephsonDepartment of Medicine, The University of Chicago, Chicago, Illinois, USA.
Yeoungjee ChoFaculty of Medicine, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia; Centre for Kidney Disease Research, Translational Research Institute, Brisbane, Australia.
David W JohnsonFaculty of Medicine, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia; Centre for Kidney Disease Research, Translational Research Institute, Brisbane, Australia.
Bénédicte SautenetDepartment of Nephrology Hypertension, Dialysis, Kidney Transplantation, Tours Hospital, SPHERE (Methods in Patient-Centered Outcomes and Health Research)-Institut National de la Santé et de la Recherche Médicale 1246, University of Tours and Nantes, Tours, France.
Marcello TonelliDepartment of Medicine, Libin Cardiovascular Institute and O'Brien Institute of Public Health, University of Calgary, Calgary, Alberta, Canada; Department of Community Health Sciences, Libin Cardiovascular Institute and O'Brien Institute of Public Health, University of Calgary, Calgary, Alberta, Canada.
Jonathan C CraigCollege of Medicine and Public Health, Flinders University, Adelaide, Australia.
SONG Implementation Workshop Investigators

Funding

Trajectories of Adherence to Cardiovascular Medications in Patients on DialysisK23DK103972 · NIDDK · LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER · PI SHEN, JENNY I · 2015 to 2019
$934k
NIDDK NIH HHS K23 DK103972
6 · The paper itself

Abstract

There are an estimated 14,000 randomized trials published in chronic kidney disease. The most frequently reported outcomes are biochemical endpoints, rather than clinical and patient-reported outcomes including cardiovascular disease, mortality, and quality of life. While many trials have focused on optimizing kidney health, the heterogeneity and uncertain relevance of outcomes reported across trials may limit their policy and practice impact. The international Standardized Outcomes in Nephrology (SONG) Initiative was formed to identify core outcomes that are critically important to patients and health professionals, to be reported consistently across trials. We convened a SONG Implementation Workshop to discuss the implementation of core outcomes. Eighty-two patients/caregivers and health professionals participated in plenary and breakout discussions. In this report, we summarize the findings of the workshop in two main themes: socializing the concept of core outcomes, and demonstrating feasibility and usability. We outline implementation strategies and pathways to be established through partnership with stakeholders, which may bolster acceptance and reporting of core outcomes in trials, and encourage their use by end-users such as guideline producers and policymakers to help improve patient-important outcomes.

Indexed as

ConsensusEndpoint DeterminationHumansRandomized Controlled Trials as TopicRenal Insufficiency, ChronicResearch DesignStakeholder ParticipationTreatment Outcomecore outcome setsimplementationkidney diseaseoutcomespatient-centered caretrials

Identifiers

PMID30360959
PMCPMC6620755

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.