Evidence map›Paper›PMID 30359103›Full record

ReviewAmerican journal of public health2018

Responsible Research With Urban American Indians and Alaska Natives.

Rosalina D James, Kathleen M West, Katrina G Claw, Abigail EchoHawk, Leah Dodge, Adrian Dominguez, Maile Taualii, Ralph Forquera, Kenneth Thummel, Wylie Burke

Abstract readReview
In one paragraph

Review in American journal of public health, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed.

  1. Trial
  2. Trial
  3. Trial
  4. Review
  5. Article
  6. Anti-Racist Practices in Health Care Organizations-A Qualitative Analysis.International journal of environmental research and public health · 2025
    Article
  7. Article
  8. Article
  9. Article
  10. Review
  11. Article
  12. Article
  13. Review
  14. Between Two Worlds: Impacts of COVID-19 on the AI/AN Health Research Workforce.American Indian and Alaska native mental health research (Online) · 2022
    Article
  15. Article
  16. Article
  17. Article
  18. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Rosalina D JamesRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Kathleen M WestRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Katrina G ClawRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Abigail EchoHawkRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Leah DodgeRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Adrian DominguezRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Maile TaualiiRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Ralph ForqueraRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Kenneth ThummelRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.
Wylie BurkeRosalina D. James, Abigail EchoHawk, Adrian Dominguez, Leah Dodge, and Ralph Forquera are with the Urban Indian Health Institute, Seattle Indian Health Board, Seattle, WA. Kathleen M. West, Maile Taualii, and Wylie Burke are with the Department of Bioethics and Humanities, University of Washington, Seattle. Katrina G. Claw and Kenneth Thummel are with the Department of Pharmaceutics, University of Washington, Seattle.

Funding

Genomic Health Care and the Medically UnderservedP50HG003374 · NHGRI · UNIVERSITY OF WASHINGTON · PI BURKE, WYLIE G. · 2004 to 2014
$9.8M
Vitamin K gene network: Variant discovery and characterizationP01GM116691 · NIGMS · UNIVERSITY OF WASHINGTON · PI THUMMEL, KENNETH E. · 2016 to 2020
$7.6M
COMPREHENSIVE OUTCOMES OF FRAIL ELDERS IN THE COMMUNITYK02HS000006 · AHRQ · UNIVERSITY OF CALIFORNIA SAN FRANCISCO · PI COVINSKY, KENNETH E. · 2000 to 2004
–
AHRQ HHS K02 HS000006NHGRI NIH HHS P50 HG003374NIGMS NIH HHS P01 GM116691
6 · The paper itself

Abstract

American Indian and Alaska Native (AI/AN) communities harbor understandable mistrust of research. Outside researchers have historically controlled processes, promulgating conclusions and recommended policies with virtually no input from the communities studied. Reservation-based communities can apply sovereignty rights conferred by the federal government to change this research trajectory. Many tribes now require review and approval before allowing research activities to occur, in part through the development of regulatory codes and oversight measures. Tribal oversight ensures that research is directed toward questions of importance to the community and that results are returned in ways that optimize problem solving. Unfortunately, tribal governance protections do not always extend to AI/ANs residing in urban environments. Although they represent the majority of AI/ANs, urban Indians face an ongoing struggle for visibility and access to health care. It is against this backdrop that urban Indians suffer disproportionate health problems. Improved efforts to ensure responsible research with urban Indian populations requires attention to community engagement, research oversight, and capacity building. We consider strategies to offset these limitations and develop a foundation for responsible research with urban Indians.

Indexed as

American Indian or Alaska NativePublic HealthResearchUrban PopulationCapacity BuildingCommunity-Based Participatory ResearchCommunity ParticipationCultural CompetencyEthics Committees, ResearchHealth Status DisparitiesHumansPower, PsychologicalResearch Support as TopicUnited StatesUnited States Indian Health Service

Identifiers

PMID30359103
PMCPMC6236730

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.