ArticleJournal of autism and developmental disorders2019
Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis.
Article in Journal of autism and developmental disorders, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed.
- "They Really Save Us From Ourselves" : Autism Researchers' Insights on Community Engagement and Ethics.Journal of bioethical inquiry · 2026Article
- Reporting community involvement in autism research: Findings from the journal Autism.Autism : the international journal of research and practice · 2025Article
- Public concerns and attitudes towards autism on Chinese social media based on K-means algorithm.Scientific reports · 2023Article
- Participatory autism research: Early career and established researchers' views and experiences.Autism : the international journal of research and practice · 2022Article
- From ivory tower to inclusion: Stakeholders' experiences of community engagement in Australian autism research.Frontiers in psychology · 2022Article
- Research, Clinical, and Sociological Aspects of Autism.Frontiers in psychiatry · 2021Review
- The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants.Autism : the international journal of research and practice · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.