ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2019
What matters most to sepsis survivors: a qualitative analysis to identify specific health-related quality of life domains.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers.
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Who cites it
34 citing papers in PubMed.
- Cognitive Health and Quality of Life After Surviving Sepsis: A Narrative Review.Journal of intensive care medicine · 2026Review
- Patient-reported outcomes and experience measures in clinical trials of critically ill adults with sepsis: a scoping review.Annals of the American Thoracic Society · 2026Article
- Measuring health-related quality of life in sepsis survivors and caregivers: a mapping review and a preliminary conceptual framework.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Review
- Neuroimmune Mechanisms Transforming Acute Injury to Long-Term Brain Dysfunction After Sepsis.Clinics in chest medicine · 2026Review
- A qualitative burden of disease study in patients with invasive Escherichia coli disease aged ≥ 60 years in the United States.BMC infectious diseases · 2025Article
- Long-term recovery of sensorimotor functions and prediction of participation in survivors of critical illness: a prospective cohort study.Journal of intensive care · 2025Article
- Health-Related Quality of Life Among Patients Who Have Survived an Episode of Sepsis in the United States: A Systematic Review.Infectious diseases and therapy · 2025Review
- The sepsis journey and where digital alerts can help: a qualitative, interview study with survivors and family members in England.Frontiers in public health · 2025Observational
- Functional dependence following intensive care unit-treated sepsis: three-year follow-up results from the prospective Mid-German Sepsis Cohort (MSC).The Lancet regional health. Europe · 2024Article
- Health-related quality of life and participation after inpatient rehabilitation of sepsis survivors with severe sequelae: a cohort study.Journal of rehabilitation medicine · 2024Article
- Quality of life-related and non-quality of life-related issues in ICU survivors and non-ICU-treated controls: a multi-group exploratory factor analysis.Critical care (London, England) · 2024Observational
- How do sepsis survivors experience life after sepsis? A Danish qualitative study exploring factors of importance.BMJ open · 2024Article
- Persistent neurocognitive deficits in cognitively impaired survivors of sepsis are explained by reductions in working memory capacity.Frontiers in psychology · 2024Article
- Factor Impacting Quality of Life Among Sepsis Survivors During and After Hospitalization: A Systematic Review of Current Empirical Evidence.Journal of multidisciplinary healthcare · 2024Review
- Psychometric properties of the Reintegration to Normal Living Index for sepsis survivors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Return to work after sepsis-a German population-based health claims study.Frontiers in medicine · 2023Article
- Sepsis survivors and caregivers perspectives on post-acute rehabilitation and aftercare in the first year after sepsis in Germany.Frontiers in medicine · 2023Article
- Unmet Caregiving Needs Among Sepsis Survivors Receiving Home Health Care: The Need for Caregiver Training.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Article
- Long-term Survival and Quality of Life among Survivors Discharged from a Respiratory ICU in North India: A Prospective Study.Indian journal of critical care medicine : peer-reviewed, official publication of Indian Society of Critical Care Medicine · 2022Article
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5 authors.
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Abstract
purposeIt is unknown how sepsis survivors conceptualize health-related quality of life (HRQL). We aimed to identify important HRQL domains for this population.
methodsA literature search was performed to inform an interview guide. Open-ended interviews were held with 15 purposefully sampled sepsis survivors. Interview transcripts were analyzed by interpretative phenomenological analysis to allow themes to develop organically. Resulting codes were reviewed by an independent expert. The preliminary list of domains was rated in a two-round Delphi consensus procedure with therapists and survivors.
resultsEleven domains emerged as critically important: Psychological impairment, Fatigue, Physical impairment, Coping with daily life, Return to normal living, Ability to walk, Cognitive impairment, Self-perception, Control over one's life, Family support, and Delivery of health care. Sepsis survivors want a "normal life," to walk again, and to regain control without cognitive impairment. Family support is essential to overcome sepsis aftermaths.
conclusionsSurvivors described many HRQL domains which are not captured by the QoL instruments that have traditionally been used to study ICU survivorship (i.e., SF-36 and EQ-5D). Future studies of QoL in ICU survivors should consider using both a traditional instrument so that results are comparable to previous research, as well as a more holistic QoL measurement instrument like the WHOQOL-BREF.
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