SynthesisSocial psychiatry and psychiatric epidemiology2019
Positive and negative impacts of schizophrenia on family caregivers: a systematic review and qualitative meta-summary.
Synthesis in Social psychiatry and psychiatric epidemiology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 62 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
62 citing papers in PubMed, 5 syntheses or guidelines pooled it, 143 citations in OpenAlex.
- Burden of care among caregivers of people with mental illness in Africa: a systematic review and meta-analysis.BMC psychiatry · 2024Pooled it
- Distress, burden, and wellbeing in siblings of people with mental illness: a mixed studies systematic review and meta-analysis.Psychological medicine · 2023Pooled it
- A systematic review comparing caregiver burden and psychological functioning in caregivers of individuals with schizophrenia spectrum disorders and bipolar disorders.BMC psychiatry · 2022Pooled it
- Disease-Related Risk Factors for Caregiver Burden among Family Caregivers of Persons with Schizophrenia: A Systematic Review and Meta-Analysis.International journal of environmental research and public health · 2022Pooled it
- Self-Report Measures Assessing Aspects of Personal Recovery in Relatives and Other Informal Carers of Those With Psychosis: A Systematic Review.Frontiers in psychology · 2022Pooled it
- Impact of Watson's human caring-based health promotion program on caregivers of individuals with schizophrenia.BMC health services research · 2023Trial
- Cortical Structures Underlying Schizophrenia and Sex Differences in Preadolescents: An Adolescent Brain Cognitive Development Study.Child psychiatry and human development · 2026Article
- The Role of Family-Centred Approaches in Promoting Inclusive Mental Health Care for Individuals with Psychiatric Disorders: A Scoping Review.International journal of environmental research and public health · 2026Article
- Family Caregiver Experiences with Mobile Behavioral Health Crisis Services: A Qualitative Study.Community mental health journal · 2026Article
- Affiliate stigma among family caregivers of people with mental disorders: results from a national survey in Italy.Social psychiatry and psychiatric epidemiology · 2026Article
- "I need to talk, to talk to people": a qualitative study of service user and carer views and priorities for social functioning in schizophrenia-spectrum disorders.Community mental health journal · 2026Article
- Expressed emotions and caregiving appraisals among relatives of patients with psychotic disorders: a cross-sectional study.BMC psychiatry · 2026Article
- Associations between multidimensional social support and satisfaction with community mental health services: evidence from China with heterogeneity analysis.Frontiers in public health · 2026Article
- Effectiveness of Cognitive and Behavioral Interventions in the Treatment of Schizophrenia: An Umbrella Review of Meta-Analyses.Journal of clinical medicine · 2025Review
- Self-Reported Burden Among Informal Caregivers of Patients Receiving Psychiatric Hospital Treatment: A National Cross-Sectional Study.International journal of mental health nursing · 2025Article
- Article
- Navigating family dynamics following the loss of a child to cancer: a qualitative phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Economic well-being and its association with family caregiving experiences of households affected by schizophrenia in China.Schizophrenia (Heidelberg, Germany) · 2025Article
- Quality of Life in Caregivers of Patients with Schizophrenia: A Systematic Review of the Impact of Sociodemographic, Clinical, and Psychological Factors.Behavioral sciences (Basel, Switzerland) · 2025Review
- Results of the Global Burden of Disease study for schizophrenia: trends from 1990 to 2021 and projections to 2050.Frontiers in psychiatry · 2025Article
2 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeSchizophrenia places a heavy burden on the individual with the disorder, as well as on his or her family; this burden continues over the long course of the disease. This study aimed to provide an overview of the positive and negative impacts of schizophrenia on family caregivers.
methodsFrom April to June 2017, two investigators conducted a systematic review and meta-summary of studies obtained from five electronic databases and the footnotes and citations of eligible studies. Qualitative studies that explored the experiences of family caregivers of individuals with schizophrenia were included. Study findings published between 1993 and 2017 were extracted and synthesised using narrative and summative approaches.
resultsAfter the removal of duplicates, independent reviewers screened 864 records. Subsequently, 46 full-text articles were assessed for eligibility and 23 papers were included in the synthesis. Negative impacts identified were traumatic experiences, loss of expectation of life and health, lack of personal and social resources, uncertainty and unpredictability, family disruption, conflict in interpersonal relationships, difficulty in understanding, and stigma and heredity. Meanwhile, the positive impacts identified were family solidarity, admiration, affirmation, affection, compassion, learning knowledge and skills, self-confidence, personal growth, and appreciation.
conclusionsAnalysis of the studies suggested that family members of individuals with schizophrenia face a series of traumatic situations during the course of the illness. Their subsequent experiences can be conceptualised as a continuous circle of caregiving, in which the positive impacts can be centrally positioned within the negative impacts.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.