ArticleResearch involvement and engagement2018
People with lived experience (PWLE) of depression: describing and reflecting on an explicit patient engagement process within depression research priority setting in Alberta, Canada.
Article in Research involvement and engagement, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- Methodological procedures for priority setting mental health research: a systematic review summarising the methods, designs and frameworks involved with priority setting.Health research policy and systems · 2023Pooled it
- Development of a Diabetes Rural Stakeholder Research Team and Patient-Centered Research Agenda.OTJR : occupation, participation and health · 2026Article
- Incorporating the voice of young people in mental health research: reflections from three lived experience advisory panels in Latin America.Research involvement and engagement · 2025Article
- From a Single Voice to Diversity: Reframing 'Representation' in Patient Engagement.Qualitative health research · 2024Article
- Lived experience and family engagement in psychiatry research: A scoping review of reviews.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- WHO framework on meaningful engagement: A transformational approach to integrate lived experience in the noncommunicable disease and mental health agenda.PLOS global public health · 2024Article
- Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.Research involvement and engagement · 2023Article
- Comparing an in-person workshop and a postal Delphi survey for involving health service users in health care and health research prioritization.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Keeping the Agenda Current: Evolution of Australian Lived Experience Mental Health Research Priorities.International journal of environmental research and public health · 2022Article
- What are the respiratory health research priorities in Alberta, Canada? A stakeholder consultation.BMJ open · 2022Article
- Patient oriented research in mental health: matching laboratory to life and beyond in Canada.Research involvement and engagement · 2021Article
- Engaging a person with lived experience of mental illness in a collaborative care model feasibility study.Research involvement and engagement · 2021Article
- Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation.Palliative medicine · 2021Article
- Patients as Agents in Behavioral Health Research and Service Provision: Recommendations to Support the Learning Health System.Applied clinical informatics · 2019Article
- Evidence available for patient-identified priorities in depression research: results of 11 rapid responses.BMJ open · 2019Article
- The top research questions asked by people with lived depression experience in Alberta: a survey.CMAJ openArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
16 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryThe Alberta Depression Research Priority Setting Project aimed to meaningfully involve patients, families and clinicians in determining a research agenda aligned to the needs of Albertans who have experienced depression. The project was modeled after a process developed in the UK by the James Lind Alliance and adapted to fit the Alberta, Canada context. This study describes the processes used to ensure the voices of people with lived experience of depression were integrated throughout the project stages. The year long project culminated with a facilitated session to identify the top essential areas of depression research focus. People with lived experience were engaged as part of the project's Steering Committee, as survey participants and as workshop participants. It is hoped this process will guide future priority setting opportunities and advance depression research in Alberta. ABSTRACT:
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.