ArticleBMC psychology2018
Existence, triggers, and coping with chronic sorrow: a qualitative study of caretakers of children with sickle cell disease in a National Referral Hospital in Kampala, Uganda.
Article in BMC psychology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 31 citations in OpenAlex.
- Review
- Integrating sickle cell disease care into primary healthcare in Uganda: a narrative review.Annals of medicine and surgery (2012) · 2025Review
- Examination of Chronic Sorrow Among Parents of Children With Disabilities: Cross-Sectional Study.JMIR pediatrics and parenting · 2025Article
- Public-private partnerships in tackling sickle cell disease in Uganda: a narrative review.Annals of medicine and surgery (2012) · 2025Review
- Family-Focused Nursing Research in WHO Afro-Region Member States: A Scoping Review.Journal of family nursing · 2023Article
- Knowledge and nutrition-related practices among caregivers of adolescents with sickle cell disease in the Greater Accra region of Ghana.BMC public health · 2023Article
- Influence of gender norms in relation to child's quality of care: follow-up of families of children with SCD identified through NBS in Tanzania.Journal of community genetics · 2021Article
- A Sociodemographic variables questionnaire (Q-SV) for research on family caregivers of children with chronic disease.BMC psychology · 2019Article
- Factors associated with anxiety in family caregivers of children with chronic diseases.BioPsychoSocial medicine · 2018Article
- Caregiver Perception of Sickle Cell Disease Stigma in Ghana: An Ecological Approach.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & PractitionersArticle
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
backgroundWorldwide, sickle cell disease is recognized as one of the major causes of morbidity and mortality. Caregivers and patients with such chronic illnesses experience economic, physical, social and psychological distresses which may lead to chronic sorrow. Chronic sorrow is viewed as a normal reaction to loss, however it can progress to a pathological state such as depression if the coping styles are ineffective. Therefore, the aim of this study was to explore the existence of chronic sorrow, triggers and coping with grief related feelings among caretakers of children with sickle cell disease.
methodsA descriptive qualitative study was conducted. Twelve in-depth interviews were conducted with eligible participants who were purposively selected. Deductive thematic analysis methods were used for data analysis.
resultsMany (9 out of 12) of the caretakers experienced chronic sorrow. The grief related feelings were triggered by health worker related, disease related and support related factors. Caretakers used both external and internal coping strategies. External support was derived from community, family and health facility. Internal coping strategies were behavioral and cognitive.
conclusionCaretakers of children with sickle cell disease experienced chronic sorrow and employed both internal and external coping strategies to deal with it, which could be either effective or ineffective. This study recommends that health workers should routinely screen for chronic sorrow among caretakers of children with sickle cell disease and assist caretakers to strengthen effective coping strategies to ameliorate the negative effects of chronic sorrow.
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