Trial reportJournal of pain and symptom management2019
Triggered Palliative Care for Late-Stage Dementia: A Pilot Randomized Trial.
Trial report in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 9 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
42 citing papers in PubMed, 9 syntheses or guidelines pooled it, 92 citations in OpenAlex.
- Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers.The Gerontologist · 2026Pooled it
- Impact of Specialty and Nonspecialty Palliative Care on Quality of Dying With Alzheimer's Disease or Related Dementias: A Systematic Review and Meta-Analysis.Medical care · 2025Pooled it
- Hospital-initiated palliative care interventions for adults with frailty: findings from a systematic review and narrative synthesis.Age and ageing · 2024Pooled it
- Needs-based triggers for timely referral to palliative care for older adults severely affected by noncancer conditions: a systematic review and narrative synthesis.BMC palliative care · 2023Pooled it
- Interventions for interpersonal communication about end of life care between health practitioners and affected people.The Cochrane database of systematic reviews · 2022Pooled it
- Defining end of life in dementia: A systematic review.Palliative medicine · 2021Pooled it
- Palliative care interventions in advanced dementia.The Cochrane database of systematic reviews · 2021Pooled it
- Referral criteria to specialist palliative care for patients with dementia: A systematic review.Journal of the American Geriatrics Society · 2021Pooled it
- Enhancing shared and surrogate decision making for people living with dementia: A systematic review of the effectiveness of interventions.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Family Caregivers' Perspectives on Challenges and Support Needs in Hospital-Based Palliative Care for Persons Living With Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Access to palliative care by home care clients with severe and persistent mental illness: a retrospective study of health administrative data.BMC palliative care · 2026Article
- End-of-life dementia: demographic, clinical as well as direct health care cost differences in nursing homes vs. ordinary housing.BMC health services research · 2026Article
- The Impact of Dementia Caregiving on the Health of the Spousal Caregiver.Medicina (Kaunas, Lithuania) · 2026Review
- Association of Palliative Care Initiation With Acute Healthcare Utilization Among Community-Dwelling Adults Living With Dementia.Journal of the American Geriatrics Society · 2026Article
- Palliative Care for People With Very Severe to Extreme Behavioural and Psychological Symptoms of Dementia (BPSD): A Scoping Review.Journal of advanced nursing · 2026Article
- Mortality following ground-level falls in trauma patients with dementia.Trauma surgery & acute care open · 2026Article
- Article
- Referral Criteria for Specialist Palliative Care for Patients With Dementia.JAMA network open · 2025Article
- Interventions and Predictors of Transition to Hospice for People Living With Dementia: An Integrative Review.The Gerontologist · 2025Review
- Convening Hispanic/Latino Caregiving Advisors for Inclusive Research in Dementia Palliative Care.Journal of palliative medicine · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 3 institutions in 1 country.
Funding
Abstract
contextPersons with late-stage dementia have limited access to palliative care.
objectiveThe objective of this study was to test dementia-specific specialty palliative care triggered by hospitalization.
methodsThis pilot randomized controlled trial enrolled 62 dyads of persons with late-stage dementia and family decision-makers on admission to hospital. Intervention dyads received dementia-specific specialty palliative care consultation plus postacute transitional care. Control dyads received usual care and educational information. The primary outcome was 60-day hospital or emergency department visits. Secondary patient- and family-centered outcomes were patient comfort, family distress, palliative care domains addressed in the treatment plan, and access to hospice or community-based palliative care. Secondary decision-making outcomes were discussion of prognosis, goals of care, completion of Medical Orders for Scope of Treatment (MOST), and treatment decisions.
resultsOf 137 eligible dyads, 62 (45%) were enrolled. The intervention proved feasible, with protocol completion ranging from 77% (family two-week call) to 93% (initial consultation). Hospital and emergency department visits did not differ (intervention vs. control, 0.68 vs. 0.53 transfers per 60 days, P = 0.415). Intervention patients had more palliative care domains addressed and were more likely to receive hospice (25% vs. 3%, P < 0.019). Intervention families were more likely to discuss prognosis (90% vs. 3%, P < 0.001) and goals of care (90% vs. 25%, P < 0.001) and to have a MOST at 60-day follow-up (79% vs. 30%, P < 0.001). More intervention families made decisions to avoid rehospitalization (13% vs. 0%, P = 0.033).
conclusionSpecialty palliative care consultation for hospitalized patients with late-stage dementia is feasible and promising to improve decision-making and some treatment outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.