ReviewHealth expectations : an international journal of public participation in health care and health policy2019
Potential harms associated with routine collection of patient sociodemographic information: A rapid review.
Review in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed.
- Secondary analysis of the Game of Stones trial for men with obesity: examining moderator effects and exploratory outcomes.Obesity (Silver Spring, Md.) · 2025Trial
- Primary care provider and clinic staff perspectives on the collection of demographic and social needs data in primary care clinics across five Canadian provinces.Family medicine and community health · 2026Article
- Hospitalized patients' health-related social needs: A comparison of screenings conducted by hospital staff and research staff.Journal of hospital medicine · 2026Observational
- Understanding patient preferences on providing sociodemographic information in an acute care setting: a qualitative study.BMC health services research · 2025Article
- Collecting Data on the Social Determinants of Health to Advance Health Equity in Cancer Care in Canada: Patient and Community Perspectives.Current oncology (Toronto, Ont.) · 2025Article
- Collecting sociodemographic data in primary care: qualitative interviews in community health centres.BJGP open · 2025Article
- Why Collect and Use Race/Ethnicity Data? A Qualitative Case Study on the Perspectives of Mental Health Providers and Patients During COVID-19.International journal of environmental research and public health · 2024Article
- A study of the enablers and barriers to the collection of sociodemographic data by public health units in Ontario, Canada during the COVID-19 pandemic.BMC public health · 2024Article
- Using community-based participatory research methods to build the foundation for an equitable integrated health data system within a Canadian urban context.International journal for equity in health · 2024Article
- Collection and Use of Social Determinants of Health Data in Inpatient General Internal Medicine Wards: A Scoping Review.Journal of general internal medicine · 2023Article
- Article
- Sensitivity of Pregnancy Field on the COVID-19 Case Report Form Among Pregnancies Completed Through December 31, 2020: Illinois and Tennessee.Maternal and child health journal · 2022Article
- Reporting of health equity considerations in cluster and individually randomized trials.Trials · 2020Article
- Potential harms associated with routine collection of patient sociodemographic information: A rapid review.Health expectations : an international journal of public participation in health care and health policy · 2019Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundHealth systems are recommended to capture routine patient sociodemographic data as a key step in providing equitable person-centred care. However, collection of this information has the potential to cause harm, especially for vulnerable or potentially disadvantaged patients.
objectiveTo identify harms perceived or experienced by patients, their families, or health-care providers from collection of sociodemographic information during routine health-care visits and to identify best practices for when, by whom and how to collect this information. SEARCH STRATEGY: We searched OVID MEDLINE, PubMed "related articles" via NLM and healthevidence.org to the end of January 2018 and assessed reference lists and related citations of included studies. INCLUSION CRITERIA: We included studies reporting on harms of collecting patient sociodemographic information in health-care settings. DATA EXTRACTION AND SYNTHESIS: Data on study characteristics and types of harms were extracted and summarized narratively. MAIN
resultsEighteen studies were included; 13 provided patient perceptions or experiences with the collection of these data and seven studies reported on provider perceptions. Five reported on patient recommendations for collecting sociodemographic information. Patients and providers reported similar potential harms which were grouped into the following themes: altered behaviour which may affect care-seeking, data misuse or privacy concerns, discomfort, discrimination, offence or negative reactions, and quality of care. Patients suggested that sociodemographic information be collected face to face by a physician. DISCUSSION AND
conclusionsOverall, patients support the collection of sociodemographic information. However, harms are possible, especially for some population subgroups. Harms may be mitigated by providing a rationale for the collection of this information.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.