ArticleJournal of pediatric hematology/oncology2019
Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease.
Article in Journal of pediatric hematology/oncology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Using Electronic Health Record Portals to Improve Patient Engagement: Research Priorities and Best Practices.Annals of internal medicine · 2020Pooled it
- "Really Hard to Navigate": A Qualitative Study of Motivators, Barriers, and Supports of Adolescent-Clinician Communication on Patient Portals.Journal of pediatric and adolescent gynecology · 2025Article
- Engaging Adolescents in Using Online Patient Portals.JAMA network open · 2023Article
- Patient portals for the adolescent and young adult population: Benefits, risks and guidance for use.Current problems in pediatric and adolescent health care · 2021Article
- A scoping review of transition interventions for young adults with sickle cell disease.Pediatric blood & cancer · 2021Article
- Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study.JMIR research protocols · 2021Article
- Assessment of: self-management skills towards transition readiness and patient portal use among Hispanic adolescent and young adult patients.BMJ paediatrics open · 2020Article
- A program of transition to adult care for sickle cell disease.Hematology. American Society of Hematology. Education Program · 2019Review
- The Use of an Electronic Health Record Patient Portal to Access Diagnostic Test Results by Emergency Patients at an Academic Medical Center: Retrospective Study.Journal of medical Internet research · 2019Article
- Patient Engagement as Measured by Inpatient Portal Use: Methodology for Log File Analysis.Journal of medical Internet research · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
objectiveTo examine the acceptability, feasibility, and efficacy of a health care portal. OBSERVATIONS: Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.
conclusionsElectronic portals are promising tools for improving medical self-management.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.