Evidence map›Paper›PMID 30326164›Full record

ArticleClinical transplantation2018

The importance of transplant program measures: Surveys of three national patient advocacy groups.

Cory R Schaffhausen, Marilyn J Bruin, Sauman Chu, Andrew Wey, Jon J Snyder, Bertram L Kasiske, Ajay K Israni

Abstract read
In one paragraph

Article in Clinical transplantation, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
3.0field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 13 citations in OpenAlex.

  1. Review
  2. Identifying and understanding variation in population-based access to liver transplantation in the United States.American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons · 2023
    Article
  3. Listing at non-local transplant centers is associated with increased access to deceased donor kidney transplantation.American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons · 2022
    Article
  4. Kidney transplant program waitlisting rate as a metric to assess transplant access.American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons · 2021
    Article
  5. Article
  6. Tool to Aid Patients in Selecting a Liver Transplant Center.Liver transplantation : official publication of the American Association for the Study of Liver Diseases and the International Liver Transplantation Society · 2020
    Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 1 country.

Cory R SchaffhausenHennepin Healthcare Research Institute, Minneapolis, Minnesota.ORCID 0000-0003-1705-1560
Marilyn J BruinCollege of Design, University of Minnesota, Minneapolis, Minnesota.
Sauman ChuCollege of Design, University of Minnesota, Minneapolis, Minnesota.
Andrew WeyScientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota.ORCID 0000-0002-2584-3018
Jon J SnyderScientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota.
Bertram L KasiskeScientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota.
Ajay K IsraniScientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota.ORCID 0000-0002-7607-0430
University of Minnesota · USHennepin Healthcare Research Institute · US

Funding

Creating a patient-centered report card for solid organ transplant candidatesR01HS024527 · AHRQ · HENNEPIN HEALTHCARE RESEARCH INSTITUTE · PI ISRANI, AJAY K · 2016 to 2020
$1.3M
AHRQ HHS R01 HS024527
6 · The paper itself

Abstract

The Scientific Registry of Transplant Recipients (SRTR) provides federally mandated program-specific transplant data to the public. Currently, there is little understanding of how different program measures are prioritized by patients in selecting a program for transplantation. This study recruited 479 transplant advocacy group members from mailing lists and social media of the National Kidney Foundation (NKF), transplant families (TF), and Transplant Recipient International Organization (TRIO). Survey participants identified how many different programs would be reasonable to consider and viewed four measures that have recently been displayed on SRTR public search result websites and six measures not recently displayed and indicated importance on a 5-point scale. Four hundred two completed the survey (TF = 26; TRIO = 34; NKF = 342). Seventy-eight percent indicated that considering more than one program would be reasonable. Linear mixed models adjusted for organization, education, and gender. Likert scores for pretransplant (transplant rate) and transplant volume measures were similar and were very or extremely important to over 80% of participants. Posttransplant (survival after transplant) was rated as 0.52 points higher, confidence interval (0.41, 0.64). Results indicate that many patient advocacy group members find a choice between two or more programs reasonable and value multiple measures when assessing programs where they may want to undergo transplantation.

Indexed as

Patient AdvocacyAdultAgedAged, 80 and overFemaleFollow-Up StudiesHumansLiving DonorsMaleMiddle AgedOrgan TransplantationPrognosisProgram EvaluationQuality of Health CareRegistriesSurveys and Questionnairesnationalpatientquality metricssurvey

Identifiers

PMID30326164
PMCPMC6959002
OpenAlexW2896567536

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.