Evidence map›Paper›PMID 30324355›Full record

ArticleJournal of urban health : bulletin of the New York Academy of Medicine2020

Privacy, Confidentiality, and Safety Considerations for Conducting Geographic Momentary Assessment Studies Among Persons Who Use Drugs and Men Who Have Sex with Men.

Abby E Rudolph, April M Young, Jennifer R Havens

Abstract readComparative Study
In one paragraph

Article in Journal of urban health : bulletin of the New York Academy of Medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Abby E RudolphDepartment of Epidemiology, Boston University School of Public Health, Boston, MA, 02118, USA. abby.rudolph@temple.edu.ORCID 0000-0003-1786-3307
April M YoungDepartment of Epidemiology, University of Kentucky College of Public Health, Lexington, KY, 40536, USA.
Jennifer R HavensCenter on Drug and Alcohol Research, Department of Behavioral Science, University of Kentucky College of Medicine, Lexington, KY, 405308, USA.

Funding

Examining the Impact of the Twin Epidemics of Methamphetamine and Opioid Use on Overdose, Risky Sex and Treatment Engagement among PWUD in Two Rural Appalachian CohortsR01DA033862 · NIDA · UNIVERSITY OF KENTUCKY · PI Jennifer R Havens · 2012 to 2026
$6.9M
Training Program in HIV Prevention Research EthicsR25DA031608 · NIDA · FORDHAM UNIVERSITY · PI FISHER, CELIA B · 2011 to 2025
$4.9M
Social networks and HIV risk among rural drug usersR01DA024598 · NIDA · UNIVERSITY OF KENTUCKY · PI HAVENS, JENNIFER R · 2008 to 2012
$2.6M
HIV and Substance Abuse Epidemiology among IDUs: Structural and Network Risk FactK01DA033879 · NIDA · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI RUDOLPH, ABBY ELISE · 2012 to 2016
$877k
Combining social network, spatial, and phylogenetic approaches to identify new HIV infectionsR21AI131979 · NIAID · TEMPLE UNIV OF THE COMMONWEALTH · PI RUDOLPH, ABBY ELISE · 2017 to 2018
$517k
Role of Social Media and Mobile Apps in Sexual and Drug Co-Usage Networks of MSMR03DA039740 · NIDA · UNIVERSITY OF KENTUCKY · PI YOUNG, APRIL MARIE · 2016 to 2017
$311k
National Institute of Allergy and Infectious Diseases R21AI131979NIAID NIH HHS R21 AI131979NIDA NIH HHS K01 DA033879NIDA NIH HHS K01DA033879NIDA NIH HHS R01 DA024598NIDA NIH HHS R01DA024598NIDA NIH HHS R01 DA033862NIDA NIH HHS R01DA033862NIDA NIH HHS R03 DA039740NIDA NIH HHS R03DA039740NIDA NIH HHS R25 DA031608NIDA NIH HHS R25DA031608
6 · The paper itself

Abstract

Geographic momentary assessments (GMA) collect real-time behavioral data in one's natural environment using a smartphone and could potentially increase the ecological validity of behavioral data. Several studies have evaluated the feasibility and acceptability of GMA among persons who use drugs (PWUD) and men who have sex with men (MSM), but fewer have discussed privacy, confidentiality, and safety concerns, particularly when illegal or stigmatized behavioral data were collected. This study explores perceptions regarding privacy, confidentiality, and safety of GMA research among PWUD and MSM recruited in three different settings (rural Appalachia, a mid-sized city in the South, and a mid-Atlantic city). Between November 2014 and April 2017, we recruited 35 PWUD from rural Appalachian Kentucky (N = 20) and Baltimore, Maryland (N = 15) and 20 MSM from Lexington, Kentucky to complete semi-structured qualitative interviews. Through thematic analyses, we identified and compared privacy, confidentiality, and safety concerns by demographic characteristics, risk behaviors, and setting. Privacy, confidentiality, and safety concerns varied by setting, age, smartphone ownership, use of illegal drugs, and history of drug-related arrests. Among those who used drugs, participants reported concerns with being tracked and burden associated with carrying and safeguarding study phones and responding to survey prompts. Privacy and confidentiality concerns were noted in each setting, but tracking concerns were greatest among Baltimore participants and led many to feel that they (or others) would be unwilling to participate or comply with study procedures. While locations considered to be sensitive varied by setting, participants in all settings said they would take measures to prevent sensitive information from being collected (i.e., intentionally disable devices, leave phones at home, alter response times). Privacy, confidentiality, and safety concerns may limit the accuracy of risk location information, study compliance, and participation. As concerns were often greatest among those engaging in illegal behaviors and with the highest risk behaviors, selection bias and non-response bias could negatively influence the representativeness and validity of study findings.

Indexed as

PrivacyAdolescentAdultAppalachian RegionBaltimoreCitiesConfidentialityDrug UsersHomosexuality, MaleHumansKentuckyMaleRural PopulationSurveys and QuestionnairesUrban PopulationYoung AdultConfidentialityGeographic momentary assessmentMen who have sex with menPeople who use drugsPrivacyRuralUrban

Identifiers

PMID30324355
PMCPMC7101455

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.