ArticleInternational journal of chronic obstructive pulmonary disease
Enlightening chronic obstructive pulmonary disease through patients' and caregivers' narratives.
Article in International journal of chronic obstructive pulmonary disease. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 2 of them syntheses that pooled it.
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Who cites it
10 citing papers in PubMed, 2 syntheses or guidelines pooled it, 25 citations in OpenAlex.
- Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review.Palliative medicine · 2020Pooled it
- Sexual Health in COPD: A Systematic Review and Meta-Analysis.International journal of chronic obstructive pulmonary diseasePooled it
- Support Needs of Patients with Chronic Obstructive Pulmonary Disease (COPD) and Asthma Throughout Their Patient Journey: A Qualitative Study.International journal of chronic obstructive pulmonary disease · 2025Article
- A novel application of lemmatize and thematic analysis to understand protective measures perspectives of patients with chronic respiratory disease during the first outbreak of COVID-19 pandemic: a qualitative study.Frontiers in public health · 2024Article
- Treatment Burden Discussion in Clinical Encounters: Priorities of COPD Patients, Carers and Physicians.International journal of chronic obstructive pulmonary disease · 2022Article
- Ten minutes to midnight: a narrative inquiry of people living with dying with advanced copd and their family members.International journal of qualitative studies on health and well-being · 2021Article
- Narrative Analysis of the Impact of COVID-19 on Patients with Chronic Obstructive Pulmonary Disease, Their Caregivers, and Healthcare Professionals in Italy.International journal of chronic obstructive pulmonary disease · 2021Article
- The emotional and social burden of heart failure: integrating physicians', patients', and caregivers' perspectives through narrative medicine.BMC cardiovascular disorders · 2020Article
- COPD at the end of life: Predictors of the emotional distress of patients and their family caregivers.PloS one · 2020Article
- Use of narrative medicine to identify key factors for effective doctor-patient relationships in severe asthma.Multidisciplinary respiratory medicine · 2019Article
Corrections and comments
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Authors and funding
8 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe primary aim of this research was to raise awareness for COPD through real narratives of patients, caregivers, and pulmonologists. The second objective includes providing clinicians new means of caring for and treating patients with COPD.
methodsUsing narrative medicine, testimonies from patients, their caregivers, and clinicians were collected through an online questionnaire enriched by a narrative plot. Narrations were analyzed throughout descriptive statistics and an elaboration of recurring words and expressions.
resultsThroughout the project, 350 narratives were collected from 235 patients, 55 caregivers, and 60 physicians. Though a generally neutral reaction had been observed upon diagnosis, COPD had been found to have a high impact on the patients' and caregivers' lives. Metaphors utilized by patients and caregivers were suggestive of fear and panic unlike those utilized by clinicians who usually had a more technical approach. Smoking was a significant concern for not only patients and caregivers but also clinicians.
conclusionPhysicians are therefore challenged to find new ways of communicating COPD to raise awareness on this pathology and encourage corrective habits. An important social objective should be the implementation of a health system that is able to optimize patients' and caregivers' lives.
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