Evidence map›Paper›PMID 30316999›Full record

ArticleContemporary clinical trials2018

iCanCope with Sickle Cell Pain: Design of a randomized controlled trial of a smartphone and web-based pain self-management program for youth with sickle cell disease.

Tonya M Palermo, William T Zempsky, Carlton D Dampier, Chitra Lalloo, Amos S Hundert, Lexa K Murphy, Nitya Bakshi, Jennifer N Stinson

Registry-linked trialOpen access · greenAbstract readClinical Trial Protocol
PubMed Full text at PMC Publisher
In one paragraph

Article in Contemporary clinical trials, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06991673 (Adolescent Surgery Roadmap Feasibility and Acceptability Study), which is not on this map. Cited by 23 papers.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06991673 naenrolling by invitationnot on this mapstarted 2025, after this paper: background citation

Adolescent Surgery Roadmap Feasibility and Acceptability Study

TypeinterventionalSponsorUniversity of MichiganRan2025 to 2029Enrolled100ConditionsPediatric Surgical ProceduresArmsBehavioral Treatment
3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 47 citations in OpenAlex.

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  18. Digital behavioural interventions for people with sickle cell disease.The Cochrane database of systematic reviews · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 6 institutions in 2 countries.

Tonya M PalermoDepartment of Anesthesiology and Pain Medicine, University of Washington, USA; Seattle Children's Research Institute, USA. Electronic address: tonya.palermo@seattlechildrens.org.
William T ZempskyDivision of Pain and Palliative Medicine, Connecticut Children's Medical Center, University of Connecticut School of Medicine, USA.
Carlton D DampierDepartment of Pediatrics, Emory University, USA.
Chitra LallooThe Hospital for Sick Children, Child Health Evaluative Sciences, Canada; Institute of Health Policy Management and Evaluation, University of Toronto, Canada.
Amos S HundertThe Hospital for Sick Children, Child Health Evaluative Sciences, Canada.
Lexa K MurphySeattle Children's Research Institute, USA.
Nitya BakshiDepartment of Pediatrics, Emory University, USA.
Jennifer N StinsonThe Hospital for Sick Children, Child Health Evaluative Sciences, Canada; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Canada; Institute of Health Policy Management and Evaluation, University of Toronto, Canada.
Emory University · USHospital for Sick Children · CAInstitute for Clinical Evaluative Sciences · CASickKids Foundation · CAUniversity of Connecticut · USUniversity of Washington · US

Funding

iCanCope with Sickle Cell DiseaseR01HD086978 · NICHD · SEATTLE CHILDREN'S HOSPITAL · PI DAMPIER, CARLTON, PALERMO, TONYA M · 2016 to 2020
$2.4M
NICHD NIH HHS R01 HD086978
6 · The paper itself

Abstract

Many adolescents with sickle cell disease (SCD) experience recurrent and chronic pain, which has a negative impact on their health-related quality of life (HRQL). Cognitive-behavioral therapy (CBT) interventions can lead to improvement in pain and HRQL, yet due to barriers to care, most youth with SCD will not receive these interventions. To address this need for innovative programs targeting youth with SCD pain, we developed iCanCope, a tailored smartphone and web-based program that delivers a pain self-management intervention to youth with SCD. We describe the rationale, design, and implementation of a three-site parallel group randomized controlled trial with a sample of 160 adolescents with SCD and their parent caregivers. The iCanCope program includes pain self-management skills training (personalized CBT-based coping skills such as deep breathing, relaxation, and cognitive skills), goal setting, and social support. The attention control group is provided with access to a self-guided website with education about SCD. Assessments will occur at baseline (T

Indexed as

Adaptation, PsychologicalInternetMobile ApplicationsAdolescentAnemia, Sickle CellBreathing ExercisesChildChronic PainCognitive Behavioral TherapyHumansPain ManagementRandomized Controlled Trials as TopicRelaxation TherapySelf-ManagementSmartphoneSocial SupportCognitive-behavioral therapyPainPain managementSickle Cell DiseaseSmartphone application

Identifiers

PMID30316999
PMCPMC6218943
OpenAlexW2896085962

What OpenQuestion holds

Textmetadata
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.