ArticlePloS one2018
Beliefs about people with albinism in Uganda: A qualitative study using the Common-Sense Model.
Article in PloS one, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 53 citations in OpenAlex.
- A participatory systematic review on human rights and the birth of a child with albinism in sub-Saharan Africa.Women's health (London, England)Pooled it
- The impact of stigma on people with albinism in Africa: a narrative review.Journal of community genetics · 2026Review
- Clinico-pathologic profile of skin cancers in oculocutaneous albinism at Universitas Academic Hospital.Health SA = SA Gesondheid · 2025Article
- Community perceptions towards children living with albinism in Africa: An integrative review.African journal of disability · 2025Review
- Mapping a research-advocacy-policy agenda on human rights and albinism: a mixed methods project.International journal for equity in health · 2024Article
- "We are not there yet": perceptions, beliefs and experiences of healthcare professionals caring for women with pregnancy-related pelvic girdle pain in Australia.BMC pregnancy and childbirth · 2023Article
- Living with albinism in an African community: exploring the challenges of persons with albinism in Lilongwe District, Malawi.Heliyon · 2021Article
- Sociodemographic features of a cohort of people living with albinism in Botswana.JAAD international · 2021Article
- Reactions to and explanations for the birth of a baby with albinism: a qualitative study in Busoga, Uganda.BMJ open · 2021Article
- Comorbidity of sickle cell trait and albinism: a cross-sectional survey in the Democratic Republic of the Congo.The Pan African medical journal · 2020Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Albinism includes a group of inherited conditions that result in reduced melanin production. It has been documented across the world, with a high frequency in sub-Saharan Africa. There is very little published research about the lives of people with albinism, but available evidence shows that myths abound regarding their condition. They are feared, viewed with suspicion and believed to have supernatural powers. In this study we explored the links between beliefs, myths, traditions and positive/negative attitudes that surround people with albinism in Uganda. The study was located philosophically within Ubuntu-an Afrocentric worldview-and theoretically within the Common-Sense Model of self-regulation of health and illness that originates from the work of Leventhal in 2003. This qualitative study took place in eight districts of Busoga sub-region, Uganda between 2015 and 2017. Data collection comprised eight group discussions and 17 individual interviews with a range of informants, capturing the viewpoints of 73 participants. Findings lend support to previous research, highlighting the life-time discrimination and disadvantage experienced by many people with albinism. It shows that there is still much to be done to address the pervasive and potentially harmful beliefs and misconceptions about people with albinism.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.