ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019
Caring for the person with cancer and the role of digital technology in supporting carers.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 25 citations in OpenAlex.
- Development and validation of the self-care in partners of cancer patients (SC-PC) questionnaire: a mixed methods study protocol.BMJ open · 2026Article
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- Coping with family function changes: A qualitative study of couples facing advanced lung cancer.Asia-Pacific journal of oncology nursing · 2024Article
- People affected by cancer and their carers from gender and sexually diverse communities: their experiences and the role of smartphone applications.BMC public health · 2024Article
- Women's experience of the health information process involving a digital information tool before commencing radiation therapy for breast cancer: a deductive interview study.BMC health services research · 2023Article
- Feasibility study of a self-guided internet-based intervention for family caregivers of patients with cancer (OAse).Scientific reports · 2022Article
- Utility, barriers and facilitators to the use of connected health to support families impacted by paediatric cancer: a qualitative analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Optimizing Social Support in Oncology with Digital Platforms.JMIR cancer · 2022Article
- A Smartphone Remote Monitoring App to Follow Up Colorectal Cancer Survivors: Requirement Analysis.JMIR cancer · 2022Article
- Couples Coping With Hematological Cancer: Support Within and Outside the Couple - Findings From a Qualitative Analysis of Dyadic Interviews.Frontiers in psychology · 2022Article
- Assessing Needs and Experiences of Preparing for Medical Emergencies Among Children With Cancer and Their Caregivers.Journal of pediatric hematology/oncology · 2020Article
- Article
- Challenges and Recommendations for the Deployment of Information and Communication Technology Solutions for Informal Caregivers: Scoping Review.JMIR aging · 2020Article
- Response to: "Caring for the person with cancer and the role of digital technology in supporting carers".Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- A Smartphone App to Support Carers of People Living With Cancer: A Feasibility and Usability Study.JMIR cancer · 2019Article
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeInformal carers may experience a range of unmet needs during the caring period and, at times, lack support to adequately manage care of the person with cancer and balance personal family and work commitments. The aim of this study was to understand the needs of informal carers of people with cancer and how digital technology may be used to address carers' needs.
methodsFocus groups and semi-structured interviews were conducted with 45 carers. Carers discussed supports and services they used to address their needs, barriers to accessing support, and how digital technology could assist in meeting their needs.
resultsCarers used informal support such as friends and family and formal support including respite and community groups during the caring period. Barriers to accessing support included reluctance to seek external help, sensitivities associated with prioritising carers' needs over patients' needs, and the adequacy of information received. Technology was reported to have the potential to allow carers' privacy to seek support; however, carers' attitudes towards technology differed.
conclusionsCarers require support during the caring period to help balance their own needs with the needs of the person receiving cancer treatment. Digital technology may provide an opportunity to deliver support to carers; however, further research is needed to assess the appropriateness of these interventions to inform improved health outcomes for this vulnerable group.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.