ArticleIntestinal research2018
IBD2020 global forum: results of an international patient survey on quality of care.
Article in Intestinal research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Diagnostic delay in adult inflammatory bowel disease: A systematic review.Indian journal of gastroenterology : official journal of the Indian Society of Gastroenterology · 2023Pooled it
- Multicriteria Decision Analysis for Updating of Quality Indicators for Inflammatory Bowel Disease Comprehensive Care Units in Spain.Journal of Crohn's & colitis · 2022Pooled it
- Unmet health-related needs in patients with Crohn's disease in Belgium: a mixed-methods study.Archives of public health = Archives belges de sante publique · 2025Article
- Children and Young Adults With Inflammatory Bowel Disease Have an Increased Incidence and Risk of Developing Mental Health Conditions: A UK Population-Based Cohort Study.Inflammatory bowel diseases · 2024Observational
- Impact of mental health comorbidity in children and young adults with inflammatory bowel disease: a UK population-based cohort study.BMJ open · 2024Observational
- Sources of diagnostic delay for people with Crohn's disease and ulcerative colitis: Qualitative research study.PloS one · 2024Article
- The 2023 Impact of Inflammatory Bowel Disease in Canada: Access to and Models of Care.Journal of the Canadian Association of Gastroenterology · 2023Review
- Unmet Challenges in Patients with Crohn's Disease.Journal of clinical medicine · 2023Review
- Patient-reported Outcomes: the ICHOM Standard Set for Inflammatory Bowel Disease in Real-life Practice Helps Quantify Deficits in Current Care.Journal of Crohn's & colitis · 2022Article
- Quality of care in patients with inflammatory bowel disease from a public health center in Brazil.World journal of clinical cases · 2022Article
- Inflammatory bowel disease patient-reported quality assessment should drive service improvement: a national survey of UK IBD units and patients.Alimentary pharmacology & therapeutics · 2022Article
- Early Diagnosis, Early Stratification, and Early Intervention to Deliver Precision Medicine in IBD.Inflammatory bowel diseases · 2022Review
- The new frontier: Certifying quality standards in the inflammatory bowel disease care.United European gastroenterology journal · 2021Article
- Ulcerative Colitis Narrative Global Survey Findings: Communication Gaps and Agreements Between Patients and Physicians.Inflammatory bowel diseases · 2021Article
- Consensus standards of healthcare for adults and children with inflammatory bowel disease in the UK.Frontline gastroenterology · 2020Article
- Quality of Care in Inflammatory Bowel Disease through Patients' Eyes: Validation of the Portuguese Version of IQCARO-QoC Questionnaire.GE Portuguese journal of gastroenterologyArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
BACKGROUND/
aimsIBD2020 is a global forum for standards of care in inflammatory bowel disease (IBD). The aim of the IBD2020 survey was to identify and describe variations in quality care of IBD.
methodsPatients with IBD from Finland, Italy, France, Canada, Germany, UK, Spain and Sweden were surveyed during 2013 to 2014, covering: disease characteristics; impact on life and work; organization and perceived quality of care.
resultsSeven thousand five hundred and seven patients participated (median age, 39 years [range, 10-103 years]; 2,354 male [31.4%]), including 4,097 (54.6%) with Crohn's disease (CD) and 3,410 (45.4%) with ulcerative colitis (UC). Median time from symptom onset to diagnosis was 1 year for both CD (range, 0-47 years) and UC (range, 0-46 years), with no clear evidence of improvement in diagnostic delay over the preceding 24 years. Half of the patients (3,429; 50.0%) rated their care as "excellent" or "very good," with similar results for CD and UC across countries. Five factors were significantly (P<0.01) associated with perceived good quality of care: quality of specialist communication; review consultation being long enough; failure to share information; no access to a dietician; speed of advice.
conclusionsThe IBD2020 survey has highlighted areas related to quality of care of IBD from the patients' perspective, with scope for improvement.
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