ArticleJournal of the American Geriatrics Society2018
Personalized Goal Attainment in Dementia Care: Measuring What Persons with Dementia and Their Caregivers Want.
Article in Journal of the American Geriatrics Society, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
39 citing papers in PubMed, 1 synthesis or guideline pooled it, 76 citations in OpenAlex.
- Setting individualised goals for people living with dementia and their family carers: A systematic review of goal-setting outcome measures and their psychometric properties.Dementia (London, England) · 2024Pooled it
- Goals of Frail Older People Living With Chronic Kidney Disease: A Mixed Methods Study.Journal of the American Geriatrics Society · 2025Trial
- Efficacy of the residential care transition module: A telehealth intervention for dementia family caregivers of relatives living in residential long-term care settings.Psychology and aging · 2024Trial
- Parent, child, and family outcomes following Acceptance And Commitment Therapy for parents of autistic children: A randomized controlled trial.Autism : the international journal of research and practice · 2024Trial
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- Impact of an Advance Care Planning Video Intervention on Care of Short-Stay Nursing Home Patients.Journal of the American Geriatrics Society · 2021Trial
- Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers.Clinical interventions in aging · 2019Trial
- A Model for Developing Subspecialty Clinical Practice Guidelines: The Geriatric Emergency Department Guidelines 2.0.Journal of the American College of Emergency Physicians open · 2025Article
- Patient and family perceptions of rural primary care interprofessional memory clinics for diagnosis and management of dementia: a mixed methods study.BMC health services research · 2025Article
- Investigating the Role of Situational Disruptors in Engagement with Digital Mental Health Tools.CSCW : proceedings of the Conference on Computer-Supported Cooperative Work. Conference on Computer-Supported Cooperative Work · 2025Article
- Patient-Centered Measures of Goal Concordance in Geriatrics and Palliative Care: A Scoping Review.JAMA network open · 2025Article
- Diagnoses Associated With Hospitalization of Nursing Home Residents With Severe Functional Impairment and Terminal Illness.Journal of the American Medical Directors Association · 2025Article
- Understanding the Implementation of CareCoach-A Blended eHealth Intervention for Carers of People Living with Dementia: A Qualitative Process Evaluation Using Normalisation Process Theory.Behavioral sciences (Basel, Switzerland) · 2025Article
- Exploring Antipsychotic Initiation Among Persons Living With Dementia in a Comprehensive Dementia Care Program.Journal of the American Geriatrics Society · 2025Article
- Qualitative evaluation of My Life Today - A co-produced personal tool from the IDEAL programme to help people with dementia monitor valued aspects of their lives.Dementia (London, England) · 2024Article
- Association between days spent at home and functional status and health among persons living with dementia.Age and ageing · 2024Article
- Turning apathy into action in neurodegenerative disease: Development and pilot testing of a goal-directed behaviour app.Neuropsychological rehabilitation · 2024Article
- 2024 Alzheimer's disease facts and figures.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- Technology Assistance in Dementia (Tech-AiD): A Framework for Care in the Digital Age.Journal of health service psychology · 2024Article
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 1 country.
Funding
Abstract
objectivesTo develop a process of goal-setting and measurement of goal attainment in a dementia care management program.
designObservational.
settingDementia care management program in an urban academic medical center.
participantsPersons with dementia (N=101) and their caregivers; nurse practitioner dementia care managers (N=5).
interventionSpecification of a personalized health goal and action plan and measurement of goal attainment using goal attainment scaling in a clinical care visit. MEASUREMENTS: Goal attainment at 6 and 12 months; focus groups of 5 dementia care managers.
resultsEighty-four percent of participant goals were nonmedical, 47% were related to quality of life, and 29% were caregiver support goals. Eighty-eight percent of participants felt that the goal they set was meaningful and 74% that the goal-setting process captured something different from usual care, and 85% found the process helpful in planning for future care. At 6 months, 74% of dyads had achieved or exceeded their expected level of goal attainment. Dementia care managers felt that the goal-setting process improved their understanding of what was most important to the patient, helped set expectations about disease progression and care needs, and provided positive reinforcement when goals were accomplished and an opportunity for revision when goals were not met.
conclusionGoal setting using goal attainment scaling can be incorporated into the care of persons with dementia to establish and attain person-centered goals. Research is needed to further develop personalized goal attainment as an outcome measure for dementia care. J Am Geriatr Soc 66:2120-2127, 2018.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.