ArticleCancer2018
Parental distress and desire for information regarding long-term implications of pediatric cancer treatment.
Article in Cancer, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed.
- Decision-making when a child with haematological malignancy relapses following haematopoietic stem cell transplantation: A meta-ethnographic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Review
- Article
- Barriers and Facilitators of Quality Family-Centered Communication in Pakistan.JCO global oncology · 2023Article
- Prognosis Communication in Pediatric Oncology: A Systematic Review.Children (Basel, Switzerland) · 2023Review
- Parents' experiences of handling oral anticancer drugs at home: 'It all falls on me …'.Journal of evaluation in clinical practice · 2023Article
- Change in the Parent-Clinician Relationship Throughout the First Year of Treatment in Pediatric Oncology.JAMA network open · 2022Article
- Article
- Late effects of cancer in children, teenagers and young adults: Population-based study on the burden of 183 conditions, in-patient and critical care admissions and years of life lost.The Lancet regional health. Europe · 2022Article
- Thinking ahead: Parents' worries about late effects of childhood cancer treatment.Pediatric blood & cancer · 2021Article
- "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer.Pediatric blood & cancer · 2021Article
- Prognostic Communication Between Oncologists and Parents of Children With Advanced Cancer.Pediatrics · 2021Article
- Early information needs of adolescents and young adults about late effects of cancer treatment.Cancer · 2020Article
- Impact of Videotaped Information on the Experience of Parents of Children with Acute Lymphoblastic Leukemia.Journal of cancer education : the official journal of the American Association for Cancer Education · 2020Article
- A Multi-Modal Family Peer Support-Based Program to Improve Quality of Life among Pediatric Brain Tumor Patients: A Mixed-Methods Pilot Study.Children (Basel, Switzerland) · 2020Article
- Talking with adolescent and young adult cancer survivors about health after cancer: A review and communication guide for clinicians.CA: a cancer journal for cliniciansReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundParents of children with cancer have unmet information needs regarding future limitations resulting from cancer or its treatment. Prior research has demonstrated that, in early care discussions, clinicians focus on the acute effects of therapy rather than long-term limitations, partly due to worries of causing distress. The validity of concerns regarding distress is unknown. In the current study, the authors evaluated parental distress associated with information regarding future limitations, and the extent to which distress is associated with information preferences.
methodsThe authors surveyed 355 parents of children with cancer within 3 months of diagnosis, and the children's physicians at Dana-Farber Cancer Institute/Boston Children's Cancer and Blood Disorders Center and the Children's Hospital of Philadelphia. The primary outcome was parental distress associated with information regarding long-term limitations.
resultsApproximately 46% of parents found information regarding future limitations to be extremely or very upsetting. In multivariate analysis, parents were more likely to consider information regarding future limitations distressing if they also found prognostic information upsetting (odds ratio [OR], 5.36; P<.001), struggled to accept their child's illness (OR, 2.57; P<.001), or had depression (OR, 1.79; P=.01). However, approximately 92% of parents considered information regarding potential future limitations to be extremely/very important. Those who found information regarding future limitations distressing were more likely to consider it important (96% vs 89%; P=.03) and to desire a precise understanding of their child's risks (92% vs 80%; P=.001).
conclusionsAlthough information regarding future limitations caused by cancer treatment is upsetting to many parents, the majority of them desire this information, and those who are distressed are more likely to value this information.
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Registered trials
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