ArticleBMC health services research2018
"Non-palliative care" - a qualitative study of older cancer patients' and their family members' experiences with the health care system.
Article in BMC health services research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Bisphosphonate alternative regimens for the prevention of osteoporotic fragility fractures: BLAST-OFF, a mixed-methods study.Health technology assessment (Winchester, England) · 2024Pooled it
- Experiences of health care in family members of persons with incurable oesophageal or gastric cancer - a hermeneutical phenomenological study.BMC palliative care · 2026Article
- What matters to patients with cancer receiving home care at the end of life? A qualitative study comparing patients' and healthcare professionals' views.International journal of qualitative studies on health and well-being · 2025Article
- Developing a values-based interorganisational Care at the End-of-Life Collaborative framework for the Australian context: A mixed-methods, practice-based research protocol.Palliative care and social practice · 2025Article
- Ambivalent and heavy burdened wanderers on a road less travelled: a meta-ethnography on end-of-life care experiences among family caregivers in rural areas.BMC health services research · 2024Article
- Patients' experiences with shared decision-making in home-based palliative care - navigation through major life decisions.BMC palliative care · 2024Article
- 'Only to reconcile with it'. The coping experience amongst middle-aged and older cancer survivors: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Do You Feel Safe at Home? A Qualitative Study among Home-Dwelling Older Adults with Advanced Incurable Cancer.Healthcare (Basel, Switzerland) · 2022Article
- Psychometric properties of the person-centred coordinated care experience questionnaire (P3CEQ) in a Norwegian radiotherapy setting.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2022Article
- [A case management questionnaire for family caregivers of geriatric patients].Zeitschrift fur Gerontologie und Geriatrie · 2022Article
- Preferences for home care to enable home death among adult patients with cancer in late palliative phase - a grounded theory study.BMC palliative care · 2022Article
- Inpatient Dignity Scale: Mandarin translation and psychometric characteristics evaluation.Nursing open · 2022Article
- Dignity of older home-dwelling women nearing end-of-life: Informal caregivers' perception.Nursing ethics · 2021Article
- The Ethical Dilemma of Truth-Telling in Healthcare in China.Journal of bioethical inquiry · 2020Article
- A sense of security in palliative homecare in a Norwegian municipality; dyadic comparisons of the perceptions of patients and relatives - a quantitative study.BMC palliative care · 2020Article
- Haematology nurses' perspectives of their patients' places of care and death: A UK qualitative interview study.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2019Article
- In Limbo: Seven Families' Experiences of Encounter with Cancer Care in Norway.International journal of integrated careArticle
- Balancing Dependence in Everyday Life- a Qualitative Study of Older Adults and Relatives' Experiences of the Post-Discharge Home-Based Follow-Up Visit.International journal of integrated careArticle
- Person-Centred Palliative Home Care From a Patient and Family Carer Perspective - A Qualitative Interpretive Meta Synthesis.Global qualitative nursing researchArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundAmong all cancer patients in the palliative phase, ¾ have reached the age of 65. An aging population will increase the number of people afflicted with cancer, and create challenges for patients, family members and health services. Nevertheless, limited research has focused explicitly on the experiences and needs of older cancer patients in the palliative phase and their families. Therefore, the aim of this study is to explore what older home dwelling cancer patients in the palliative phase and their close family members, as individuals and as a family, experience as important and difficult when facing the health services.
methodsWe used a qualitative descriptive design. Data was collected through family group interviews with 26 families. Each interview consisted of an older home dwelling cancer patient and one to four family members with different relationships to the patient (e.g. spouse, adult children and/or children-in-law). Data was analysed by qualitative content analysis.
resultsThe main theme is "Non-palliative care" - health care services in the palliative phase not tailored to family needs. Three themes are revealed: 1) exhausting cancer follow-up, 2) a cry for family involvement, and 3) fragmented care.
conclusionThe health services seem poorly organised for meeting the demands of palliative care for older home dwelling cancer patients in the palliative phase and their family members. Close family members would like to contribute but health services lack systems for involving them in the follow-up of the patient.
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