ArticleJournal of the National Medical Association2019
A Qualitative Study of Chronic Pain and Self-Management in Adults with Sickle Cell Disease.
Article in Journal of the National Medical Association, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 30 citations in OpenAlex.
- I-STRONG: an integrative, multicomponent treatment approach for chronic pain in pediatric sickle cell disease.Blood advances · 2026Trial
- Feasibility of In-Home Virtual Reality for Chronic Pain in Sickle Cell Disease.Pain management nursing : official journal of the American Society of Pain Management Nurses · 2024Trial
- Feasibility and preliminary efficacy of the Balance Program to reduce pain-related disability in pediatric sickle cell disease.Pediatric blood & cancer · 2023Trial
- A Qualitative Phenomenological Study of Treatment Options for Patients with SCD and Chronic Pain: Buprenorphine-Naloxone or Full-Agonist Therapy.International journal of environmental research and public health · 2026Article
- Preliminary Benefits of In-Home Virtual Reality for Chronic Pain in Sickle Cell Disease: Pilot Randomized Trial.Biomedicines · 2026Article
- Assessing current non-pharmacologic pain management practices for sickle cell disease in adults.Frontiers in pain research (Lausanne, Switzerland) · 2026Article
- Chronic pain lived experience of pediatric sickle cell disease: A qualitative study.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2026Article
- Virtual Reality as RESPITE: Relief Exploration for Sickle Pain Through Interventions Using Technology Engagement: A Hospital-Based Observational Study.Journal of general internal medicine · 2025Observational
- Exercise as a therapy for sickle cell-associated musculoskeletal pain among children: Healthcare professionals' perspectives.PloS one · 2025Article
- Knowledge and Experience of In-Home Virtual Reality for Chronic Pain in Sickle Cell Disease.The journal of pain · 2024Article
- Self-management needs, strategies and support for individuals with sickle cell disease in developing countries: a scoping review.BMJ open · 2024Article
- Self-management needs, strategies and support for sickle cell disease in developing countries: a scoping review protocol.BMJ open · 2024Article
- Sickle Cell Disease Update: New Treatments and Challenging Nutritional Interventions.Nutrients · 2024Review
- Developing an Implementation Blueprint for the NIH HEAL Initiative GRACE Trial: Perspectives on Acupuncture and Guided Relaxation for Chronic Sickle Cell Disease Pain.Journal of integrative and complementary medicine · 2023Article
- Variability in sickle cell knowledge by sickle cell status.Journal of genetic counseling · 2023Article
- Preliminary construct validity of patient-reported outcomes to assess chronic pain in adults with sickle cell disease.Blood advances · 2023Article
- Patient and Family Opioid Decision-Making for Pain Management in Sickle Cell Disease: A Qualitative Study.The journal of pain · 2023Article
- The management of chronic pain in sickle cell disease: an interview with Nadine Matthie.Pain management · 2023Article
- "Into the Lion's Den": COVID-19 Experiences of Black Adults with Sickle Cell Disease.Qualitative health research · 2022Article
- Updated mechanisms underlying sickle cell disease-associated pain.Neuroscience letters · 2019Review
Corrections and comments
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Authors and funding
6 authors at 1 institution in 1 country.
Funding
Abstract
Acute, intermittent vaso-occlusive pain is the hallmark of sickle cell disease (SCD) and is associated with substantial morbidity and impaired quality of life (QOL). The subgroup of adults with SCD who transition from recurrent, acute pain to chronic, persistent pain have even greater QOL impairment and higher rates of healthcare utilization. Self-management is central to SCD management; however, its role in chronic pain management is not established. This qualitative study was conducted to answer the following research questions: (1) What is the chronic pain experience of adults with SCD? (2) What self-management strategies do adults with SCD use for chronic pain? and (3) Do adults with SCD have any needs in the self-management of chronic pain? Eighteen Black adults with SCD completed a demographics questionnaire and an interview. The majority of the participants were 21-30 years of age (mean 33.5, SD 7.6), female (61.1%), employed at least part-time (61.1%), single/never married (72.2%), and had a SCD type of sickle cell anemia (55.5%). Interview analysis revealed three major themes: (1) the chronic pain experience; (2) strategies for managing chronic pain; and (3) challenges and needs in managing chronic pain. Study findings can be used to support chronic pain management among adults with SCD. Further research is needed to devise and implement effective strategies for the prevention and management of chronic SCD pain.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.