Evidence map›Paper›PMID 30259397›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2019

Experience Gained from the Development and Execution of a Multidisciplinary Multi-syndrome Hereditary Colon Cancer Family Conference.

Ilana Solomon, Christina Rybak, Lily Van Tongeren, Lili Kuzmich, Kathleen Blazer, Bita Nehoray, Mariana Niell-Swiller, Shawnie Bray, Travis H Bray, Karen Hurley and 2 more

Open access · greenAbstract read
In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.3field-weighted citation impact, top 38% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 4 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 3 institutions in 1 country.

Ilana SolomonCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA.
Christina RybakCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA.
Lily Van TongerenCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA.
Lili KuzmichCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA.
Kathleen BlazerCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA.
Bita NehorayCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA.
Mariana Niell-SwillerCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA.
Shawnie BrayHereditary Colon Cancer Foundation, Portland, OR, USA.
Travis H BrayHereditary Colon Cancer Foundation, Portland, OR, USA.
Karen HurleyCleveland Clinic, Cleveland, OH, USA.
Jeffrey N WeitzelCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA. jweitzel@coh.org.
Thomas P SlavinCity of Hope, Division of Clinical Cancer Genomics, Duarte, CA, USA. tslavin@coh.org.
City of Hope · USHereditary Disease Foundation · USCleveland Clinic · US

Funding

Transgenic Mouse FacilityP30CA033572 · NCI · CITY OF HOPE/BECKMAN RESEARCH INSTITUTE · PI XIWEI WU · 1985 to 2026
$86.3M
Mentored Clinical Scientist Research Career Development Award (Parent K08)K08CA234394 · NCI · BECKMAN RESEARCH INSTITUTE/CITY OF HOPE · PI SLAVIN, THOMAS PAUL · 2018 to 2019
$498k
NCI NIH HHS K08 CA234394NCI NIH HHS P30 CA033572NCI NIH HHS P30CA033572
6 · The paper itself

Abstract

Genetic healthcare professionals provide genetic cancer risk assessment and follow-up care for patients facing hereditary cancers. To meet the needs of those affected by hereditary colorectal cancer, City of Hope and the Hereditary Colon Cancer Foundation collaborated to develop a "Family Day" conference. We describe the development of our conference based upon the Hereditary Colon Cancer Foundation's "Family Day" program model, with refinements completed using the Participatory Action Research theoretical framework, which incorporated input from conference participants and researchers. Thirty-one participants attended the conference, representing patients with, or families, friends, and caregivers of those with, multiple colorectal cancer predisposition syndromes, including Lynch, familial adenomatous polyposis, and juvenile polyposis. Participants who completed the feedback surveys (n = 22) were highly satisfied with the presentation content, ranking the keynote lecture on family communication the highest of the conference events. Participants also provided feedback regarding how to improve future conferences. In conclusion, we share our experience and provide guidance for developing a successful hereditary colon cancer predisposition patient and family conference.

Indexed as

Genetic Predisposition to DiseasePatient Education as TopicColorectal NeoplasmsCongresses as TopicFamilyGenetic TestingHumansNeoplastic Syndromes, HereditaryPhysiciansFamilial adenomatous polyposisGenetic counselingLynch syndromePatient conferencePatient support

Identifiers

PMID30259397
PMCPMC6437007
OpenAlexW2893774729

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.