ArticleInternational journal of environmental research and public health2018
Cancer Health Literacy and Willingness to Participate in Cancer Research and Donate Bio-Specimens.
Article in International journal of environmental research and public health, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed.
- Trial
- Participant Heterogeneity in the Prostate Cancer Biobank of the NRG: An Obstacle to Broadening the Reach of Precision Oncology.JCO precision oncology · 2026Article
- Gastric Cancer Literacy and Related Factors in Iran: A Cross-Sectional Study.Cancer reports (Hoboken, N.J.) · 2026Article
- Health Literacy Applications in Patients With Cancer.Clinical journal of oncology nursing · 2025Review
- Beyond Barriers: Achieving True Equity in Cancer Care.Current oncology (Toronto, Ont.) · 2025Review
- Advancing environmental epidemiologic methods to confront the cancer burden.American journal of epidemiology · 2025Article
- Determinants of supportive care experiences for women living with breast cancer in rural communities of British Columbia.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2025Article
- Examining health literacy in the Danish general population: a cross-sectional study on the associations between individual factors and healthcare-seeking behaviour.European journal of public health · 2024Article
- Cultural Insiders and Graphic Stories to Promote Research Readiness Among the South Asian Community: A Focus on Purpose, Protection, and Participation.International journal of environmental research and public health · 2024Article
- Our needs have been ignored for a long time: Factors affecting willingness of Black and Hispanic/Latinx sexual and gender minority communities to donate biospecimens.Annals of LGBTQ public and population health · 2024Article
- Breast cancer clinical trial participation among diverse patients at a comprehensive cancer center.NPJ breast cancer · 2024Article
- "My Blood, You Know, My Biology Being out There…": Consent and Participant Control of Biological Samples.Journal of empirical research on human research ethics : JERHRE · 2024Article
- Exploring the Relationship between Medical Research Literacy and Respondents' Expressed Likelihood to Participate in a Clinical Trial.International journal of environmental research and public health · 2022Article
- Disparities in awareness of and willingness to participate in cancer clinical trials between African American and White cancer survivors.BMC cancer · 2022Article
- Disparities in trial enrollment and outcomes of Hispanic adolescent and young adult acute lymphoblastic leukemia.Blood advances · 2022Article
- Comparison of factors influencing the willingness to donate biospecimens among guardians of children with cancer and adult cancer patients.Cancer medicine · 2022Article
- Health Disparities in Recruitment and Enrollment in Research.Thoracic surgery clinics · 2022Review
- Accrual and retention of diverse patients in psychosocial cancer clinical trials.Journal of clinical and translational science · 2022Article
- Article
- How to tackle health literacy problems in chronic kidney disease patients? A systematic review to identify promising intervention targets and strategies.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
Although it has been well documented that poor health literacy is associated with limited participation in cancer clinical trials, studies assessing the relationships between cancer health literacy (CHL) and participation in research among diverse populations are lacking. In this study, we examined the relationship between CHL and willingness to participate in cancer research and/or donate bio-specimens (WPRDB) among African Americans, Latinos, and Whites. Participants completed the Cancer Health Literacy Test and the Multidimensional Cancer Literacy Questionnaire. Total-scale and subscale scores, frequencies, means, and distributions were computed. Analyses of variance, the Bonferroni procedure, and the Holm method were used to examine significant differences among groups. Cronbach's alphas estimated scales' internal consistency reliability. Significant interactions were found between race/ethnicity, gender, and CHL on WPRDB scales and subscale scores, even after education and age were taken into account. Our study confirms that CHL plays an important role that should be considered and researched further. The majority of participants were more willing to participate in non-invasive research studies (surveys, interviews, and training) or collection of bio-specimens (saliva, check cells, urine, and blood) and in studies led by their own healthcare providers, and local hospitals and universities. However, participants were less willing to participate in more-invasive studies requiring them to take medications, undergo medical procedures or donate skin/tissues. We conclude that addressing low levels of CHL and using community-based participatory approaches to address the lack of knowledge and trust about cancer research among diverse populations may increase not only their willingness to participate in research and donate bio-specimens, but may also have a positive effect on actual participation rates.
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