ArticleBMC psychiatry2018
Meaningful connections in dementia end of life care in long term care homes.
Article in BMC psychiatry, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Palliative Care in Early Dementia.Journal of pain and symptom management · 2024Pooled it
- Severe behavioral and psychological symptoms of dementia: A clinical ethics study of cognitive-behavioral units in France.Journal of Alzheimer's disease : JAD · 2026Article
- "Help with rowing the boat": Implementing and evaluating the Strengthening a Palliative Approach in Long-Term Care program in four Canadian provinces.Palliative care and social practice · 2025Article
- The Involvement of Caregivers in the End-of-life Care of an Older Adult Living in a Long-term Care Home: A Qualitative Case Study with Nurses and Relatives.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024Article
- A palliative care goals model for people with dementia and their family: Consensus achieved in an international Delphi study.Palliative medicine · 2024Article
- Just and inclusive end-of-life decision-making for long-term care home residents with dementia: a qualitative study protocol.BMC palliative care · 2022Article
- Cross-cultural conceptualization of a good end of life with dementia: a qualitative study.BMC palliative care · 2022Article
- Care dependency of patients and residents at the end of life: A secondary data analysis of data from a cross-sectional study in hospitals and geriatric institutions.Journal of clinical nursing · 2022Article
- Improving End-of-Life Care for People with Dementia in LTC Homes During the COVID-19 Pandemic and Beyond.Canadian geriatrics journal : CGJ · 2021Article
- Developing an applied model for making decisions towards the end of life about care for someone with dementia.PloS one · 2021Article
- Provincial legislative and regulatory standards for pain assessment and management in long-term care homes: a scoping review and in-depth case analysis.BMC geriatrics · 2020Article
- Social networks, social capital and end-of-life care for people with dementia: a realist review.BMJ open · 2019Review
- Sustaining the Long-Term Care Workforce: An Appreciative Inquiry into the Relational and Generative Factors Driving Staff Retention.Sage open agingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundMost persons with dementia die in long term care (LTC) homes, where palliative approaches are appropriate. However, palliative approaches have not been widely implemented and there is limited understanding of staff and family experiences of dying and bereavement in this context.
methodThis descriptive qualitative study explored family and staff experiences of end of life and end of life care for persons with dementia in LTC homes. Eighteen focus groups were conducted with 77 staff members and 19 relatives of persons with dementia at four LTC homes in four Canadian provinces.
resultsThree themes emerged: knowing the resident, the understanding that they are all human beings, and the long slow decline and death of residents with dementia. DISCUSSION: Intimate knowledge of the person with dementia, obtained through longstanding relationships, was foundational for person-centred end of life care. Health care aides need to be included in end of life care planning to take advantage of their knowledge of residents with dementia. There were unmet bereavement support needs among staff, particularly health care aides. Persons with dementia were affected by death around them and existing rituals for marking deaths in LTC homes may not fit their needs. Staff were uncomfortable answering relatives' questions about end of life.
conclusionsLongstanding intimate relationships enhanced end of life care but left health care aides with unmet bereavement support needs. Staff in LTC homes should be supported to answer questions about the trajectory of decline of dementia and death. Further research about residents' experiences of deaths of other residents is needed.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.