Evidence map›Paper›PMID 30247699›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2018

Should parents see their teen's medical record? Asking about the effect on adolescent-doctor communication changes attitudes.

Jessica S Ancker, Marianne Sharko, Matthew Hong, Hannah Mitchell, Lauren Wilcox

Abstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jessica S AnckerDepartment of Healthcare Policy & Research, Weill Cornell Medical College, New York, New York, USA.
Marianne SharkoDepartment of Healthcare Policy & Research, Weill Cornell Medical College, New York, New York, USA.
Matthew HongSchool of Interactive Computing, Georgia Institute of Technology, Atlanta, Georgia, USA.
Hannah MitchellDepartment of Healthcare Policy & Research, Weill Cornell Medical College, New York, New York, USA.
Lauren WilcoxSchool of Interactive Computing, Georgia Institute of Technology, Atlanta, Georgia, USA.

Funding

Improving healthcare quality with user-centric patient portalsK01HS021531 · AHRQ · WEILL MEDICAL COLL OF CORNELL UNIV · PI ANCKER, JESSICA S. · 2013 to 2017
$761k
AHRQ HHS K01 HS021531
6 · The paper itself

Abstract

Objective: Parents routinely access young children's medical records, but medical societies strongly recommend confidential care during adolescence, and most medical centers restrict parental records access during the teen years. We sought to assess public opinion about adolescent medical privacy. Materials and Methods: The Cornell National Social Survey (CNSS) is an annual nationwide public opinion survey. We added questions about a) whether parents should be able to see their 16-year-old child's medical record, and b) whether teens would avoid discussing sensitive issues (sex, alcohol) with doctors if parents could see the record. Hypothesizing that highlighting the rationale for adolescent privacy would change opinions, we conducted an experiment by randomizing question order. Results: Most respondents (83.0%) believed that an adolescent would be less likely to discuss sensitive issues with doctors with parental medical record access; responses did not differ by question order (P = .29). Most also believed that parents should have access to teens' records, but support for parental access fell from 77% to 69% among those asked the teen withholding question first (P = .01). Conclusions: Although medical societies recommend confidential care for adolescents, public opinion is largely in favor of parental access. A brief "nudge," asking whether parental access might harm adolescent-doctor communication, increased acceptance of adolescent confidentiality, and could be part of a strategy to prepare parents for electronic patient portal policies that medical centers impose at the beginning of adolescence.

Indexed as

AttitudeConfidentialityMedical RecordsParentsPhysician-Patient RelationsAdolescentEthics, MedicalHumansPatient PortalsPublic OpinionSurveys and QuestionnairesUnited States

Identifiers

PMID30247699
PMCPMC7647148

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.