ArticleJournal of the American Medical Informatics Association : JAMIA2018
Should parents see their teen's medical record? Asking about the effect on adolescent-doctor communication changes attitudes.
Article in Journal of the American Medical Informatics Association : JAMIA, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed.
- Advice From Adolescents With Cancer, Their Caregivers, and Clinicians on Utilizing and Improving Patient Portals in Adolescent Oncology Care.Pediatric blood & cancer · 2026Article
- Integrating Genetic Information into the Electronic Health Record: The Case of Adolescents' Revelation of Misattributed Parentage.Journal of bioethical inquiry · 2026Article
- Advice for Improving the Experience of Web-Based Patient Portals: Qualitative Interviews With Caregiver-Adolescent Dyads.JMIR pediatrics and parenting · 2025Article
- The Prevalence and Predictors of Digital Proxy Behavior in the United States: Cross-Sectional Survey Study.Journal of medical Internet research · 2025Article
- Development of Recommendations for the Digital Sharing of Notes With Adolescents in Mental Health Care: Delphi Study.JMIR mental health · 2024Article
- Guiding Principles for Adolescent Web-Based Portal Access Policies: Interviews With Informatics Administrators.JMIR pediatrics and parenting · 2024Article
- Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else).Applied clinical informatics · 2023Article
- "No one size fits all" A Multi-Method Survey of Oncology Allied Health Professionals Experiences with Lesbian, Gay, Bisexual, Transgender/Queer Questioning Adolescent, and Young Adult Patients with Cancer and Reproductive and Sexual Health".Journal of adolescent and young adult oncology · 2023Article
- Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review.Journal of medical Internet research · 2022Article
- Assessment of Prevalence of Adolescent Patient Portal Account Access by Guardians.JAMA network open · 2021Article
- Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany.BMC medical informatics and decision making · 2020Article
- Title: The Children's Oncology Planning for Emergencies (COPE) Tool: Prototyping with Caregivers of Children with Cancer.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2020Article
- Policies and procedures governing patient portal use at an Academic Medical Center.JAMIA open · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Objective: Parents routinely access young children's medical records, but medical societies strongly recommend confidential care during adolescence, and most medical centers restrict parental records access during the teen years. We sought to assess public opinion about adolescent medical privacy. Materials and Methods: The Cornell National Social Survey (CNSS) is an annual nationwide public opinion survey. We added questions about a) whether parents should be able to see their 16-year-old child's medical record, and b) whether teens would avoid discussing sensitive issues (sex, alcohol) with doctors if parents could see the record. Hypothesizing that highlighting the rationale for adolescent privacy would change opinions, we conducted an experiment by randomizing question order. Results: Most respondents (83.0%) believed that an adolescent would be less likely to discuss sensitive issues with doctors with parental medical record access; responses did not differ by question order (P = .29). Most also believed that parents should have access to teens' records, but support for parental access fell from 77% to 69% among those asked the teen withholding question first (P = .01). Conclusions: Although medical societies recommend confidential care for adolescents, public opinion is largely in favor of parental access. A brief "nudge," asking whether parental access might harm adolescent-doctor communication, increased acceptance of adolescent confidentiality, and could be part of a strategy to prepare parents for electronic patient portal policies that medical centers impose at the beginning of adolescence.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.