Evidence map›Paper›PMID 30241137›Full record

ArticleJournal of global oncology2018

In Their Own Words: A Qualitative Study of Kenyan Breast Cancer Survivors' Knowledge, Experiences, and Attitudes Regarding Breast Cancer Genetics.

Siwon Lee, Amal Gedleh, Jessica A Hill, Seemi Qaiser, Yvonne Umukunda, Philip Odiyo, Grace Kitonyi, Helen Dimaras

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of global oncology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
1.1field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 9 citations in OpenAlex.

  1. Article
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  6. Paroxysmal Kinesigenic Dyskinesia: First Molecularly Confirmed Case from Africa.Tremor and other hyperkinetic movements (New York, N.Y.) · 2019
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 1 institution in 1 country.

Siwon LeeSiwon Lee, Amal Gedleh, Seemi Qaiser, Yvonne Umukunda, and Helen Dimaras, University of Toronto; Jessica A. Hill and Helen Dimaras, The Hospital for Sick Children; Helen Dimaras, SickKids Research Institute, Toronto, Ontario, Canada; Grace Kitonyi, and Helen Dimaras, University of Nairobi; and Philip Odiyo, Faraja Cancer Support Trust, Nairobi, Kenya.
Amal GedlehSiwon Lee, Amal Gedleh, Seemi Qaiser, Yvonne Umukunda, and Helen Dimaras, University of Toronto; Jessica A. Hill and Helen Dimaras, The Hospital for Sick Children; Helen Dimaras, SickKids Research Institute, Toronto, Ontario, Canada; Grace Kitonyi, and Helen Dimaras, University of Nairobi; and Philip Odiyo, Faraja Cancer Support Trust, Nairobi, Kenya.
Jessica A HillSiwon Lee, Amal Gedleh, Seemi Qaiser, Yvonne Umukunda, and Helen Dimaras, University of Toronto; Jessica A. Hill and Helen Dimaras, The Hospital for Sick Children; Helen Dimaras, SickKids Research Institute, Toronto, Ontario, Canada; Grace Kitonyi, and Helen Dimaras, University of Nairobi; and Philip Odiyo, Faraja Cancer Support Trust, Nairobi, Kenya.
Seemi QaiserSiwon Lee, Amal Gedleh, Seemi Qaiser, Yvonne Umukunda, and Helen Dimaras, University of Toronto; Jessica A. Hill and Helen Dimaras, The Hospital for Sick Children; Helen Dimaras, SickKids Research Institute, Toronto, Ontario, Canada; Grace Kitonyi, and Helen Dimaras, University of Nairobi; and Philip Odiyo, Faraja Cancer Support Trust, Nairobi, Kenya.
Yvonne UmukundaSiwon Lee, Amal Gedleh, Seemi Qaiser, Yvonne Umukunda, and Helen Dimaras, University of Toronto; Jessica A. Hill and Helen Dimaras, The Hospital for Sick Children; Helen Dimaras, SickKids Research Institute, Toronto, Ontario, Canada; Grace Kitonyi, and Helen Dimaras, University of Nairobi; and Philip Odiyo, Faraja Cancer Support Trust, Nairobi, Kenya.
Philip OdiyoSiwon Lee, Amal Gedleh, Seemi Qaiser, Yvonne Umukunda, and Helen Dimaras, University of Toronto; Jessica A. Hill and Helen Dimaras, The Hospital for Sick Children; Helen Dimaras, SickKids Research Institute, Toronto, Ontario, Canada; Grace Kitonyi, and Helen Dimaras, University of Nairobi; and Philip Odiyo, Faraja Cancer Support Trust, Nairobi, Kenya.
Grace KitonyiSiwon Lee, Amal Gedleh, Seemi Qaiser, Yvonne Umukunda, and Helen Dimaras, University of Toronto; Jessica A. Hill and Helen Dimaras, The Hospital for Sick Children; Helen Dimaras, SickKids Research Institute, Toronto, Ontario, Canada; Grace Kitonyi, and Helen Dimaras, University of Nairobi; and Philip Odiyo, Faraja Cancer Support Trust, Nairobi, Kenya.
Helen DimarasSiwon Lee, Amal Gedleh, Seemi Qaiser, Yvonne Umukunda, and Helen Dimaras, University of Toronto; Jessica A. Hill and Helen Dimaras, The Hospital for Sick Children; Helen Dimaras, SickKids Research Institute, Toronto, Ontario, Canada; Grace Kitonyi, and Helen Dimaras, University of Nairobi; and Philip Odiyo, Faraja Cancer Support Trust, Nairobi, Kenya.
Sias University · CN

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionBreast cancer ranks among the most common adult cancers in Kenya. Individuals with a family history of the disease are at increased risk. Mutations most commonly associated with breast cancer affect BRCA1 and BRCA2; mutations in several other genes may also confer breast cancer risk. Genetic testing and counseling can help patients understand their risk and assist clinicians in choosing therapies. We aimed to uncover what patients know, experience, and think with regard to breast cancer genetics in Kenya.

methodsParticipants included breast cancer survivors age > 18 years. Participants completed a demographic questionnaire before participating in focus group discussions to uncover knowledge of, experiences with, and attitudes toward the genetics of breast cancer. Data were analyzed by inductive thematic analysis.

resultsFour focus groups were conducted. Participants had rudimentary knowledge about genetics and cancer development, and although they understood breast cancer could be familial, many suspected environmental factors causing spontaneous disease. They reported limited experience with counseling about genetic risk, perceiving that their physicians were too busy to provide comprehensive information. Many indicated they promoted cancer screening among family to promote early diagnosis. Participants expressed a need for more comprehensive counseling and access to genetic testing, recognizing the added clarity it would bring to their families' risk of cancer.

conclusionImproved communication from health care teams could clarify the risk of cancer for affected families. The introduction of affordable genetic testing and counseling for breast cancer in Kenya is welcomed by survivors.

Indexed as

AdultBreast NeoplasmsCross-Sectional StudiesFemaleHumansKenyaMiddle AgedQualitative Research

Identifiers

PMID30241137
PMCPMC6180770
OpenAlexW2773946558

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.