ArticleJournal of the American Medical Informatics Association : JAMIA2018
Patient and healthcare provider views on a patient-reported outcomes portal.
Article in Journal of the American Medical Informatics Association : JAMIA, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 3 syntheses or guidelines pooled it, 38 citations in OpenAlex.
- Pooled it
- Functionalities and Issues in the Implementation of Personal Health Records: Systematic Review.Journal of medical Internet research · 2021Pooled it
- How patient-generated health data and patient-reported outcomes affect patient-clinician relationships: A systematic review.Health informatics journal · 2020Pooled it
- Patient Preferences for Technology-Assisted Patient-Reported Outcomes Measurement of Mental Health Symptoms Among Veterans: Cross-Sectional Survey.Journal of participatory medicine · 2026Article
- Patient-Reported Outcomes Program at Scale at a Cancer Center.JCO clinical cancer informatics · 2025Article
- A Collection of Components to Design Clinical Dashboards Incorporating Patient-Reported Outcome Measures: Qualitative Study.Journal of medical Internet research · 2024Article
- Public perspectives on the use of different data types for prediction in healthcare.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design.PLOS digital health · 2023Article
- From statistics to clinics: the visual feedback of PROMIS® CATs.Journal of patient-reported outcomes · 2021Article
- Considerations to Support Use of Patient-Reported Outcomes Measurement Information System Pediatric Measures in Ambulatory Clinics.The Journal of pediatrics · 2021Article
- Using the Patient Portal Sexual Health Instrument in Surveys and Patient Questionnaires Among Sexual Minority Men in the United States: Cross-sectional Psychometric Validation Study.Journal of medical Internet research · 2021Article
- Portals of Change: How Patient Portals Will Ultimately Work for Safety Net Populations.Journal of medical Internet research · 2020Article
- Patient and clinician perspectives on a patient-facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Mobile apps for real-world evidence in health care.Journal of the American Medical Informatics Association : JAMIA · 2020Article
- Patient-reported outcomes feedback report for knee arthroplasty patients should present selective information in a simple design - findings of a qualitative study.Journal of patient-reported outcomes · 2020Article
- Experiences of Health Care Providers Using a Mobile Medical Photography Application.Applied clinical informatics · 2020Article
- Applying a User-Centered Approach to Building a Mobile Personal Health Record App: Development and Usability Study.JMIR mHealth and uHealth · 2019Article
- Using Electronic Health Records Data to Evaluate the Impact of Information Technology on Improving Health Equity: Evidence from China.Journal of medical systems · 2019Article
- Evaluating psychometric determinants of willingness to adopt sexual health patient portal services among black college students: A mixed-methods approach.Journal of American college health : J of ACHArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
Abstract
Background: Over the past decade, public interest in managing health-related information for personal understanding and self-improvement has rapidly expanded. This study explored aspects of how patient-provided health information could be obtained through an electronic portal and presented to inform and engage patients while also providing information for healthcare providers. Methods: We invited participants using ResearchMatch from 2 cohorts: (1) self-reported healthy volunteers (no medical conditions) and (2) individuals with a self-reported diagnosis of anxiety and/or depression. Participants used a secure web application (dashboard) to complete the PROMIS® domain survey(s) and then complete a feedback survey. A community engagement studio with 5 healthcare providers assessed perspectives on the feasibility and features of a portal to collect and display patient provided health information. We used bivariate analyses and regression analyses to determine differences between cohorts. Results: A total of 480 participants completed the study (239 healthy, 241 anxiety and/or depression). While participants from the tw2o cohorts had significantly different PROMIS scores (p < .05), both cohorts welcomed the concept of a patient-centric dashboard, saw value in sharing results with their healthcare provider, and wanted to view results over time. However, factors needing consideration before widespread use included personalization for the patient and their health issues, integration with existing information (eg electronic health records), and integration into clinician workflow. Conclusions: Our findings demonstrated a strong desire among healthy people, patients with chronic diseases, and healthcare providers for a self-assessment portal that can collect patient-reported outcome metrics and deliver personalized feedback.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.