SynthesisThe Gerontologist2019
How Can Autonomy Be Maintained and Informal Care Improved for People With Dementia Living in Residential Care Facilities: A Systematic Literature Review.
Synthesis in The Gerontologist, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it, 50 citations in OpenAlex.
- Beyond Diagnosis: Exploring Residual Autonomy in Dementia Through a Systematic Review.Medicina (Kaunas, Lithuania) · 2025Pooled it
- How do we provide good mealtime care for people with dementia living in care homes? A systematic review of carer-resident interactions.Dementia (London, England) · 2021Pooled it
- Unmet care needs among older people in residential care: a scoping review.BMC geriatrics · 2026Article
- The Architectural Needs and Preferences of Autistic People Versus Gerontological Residential Care Facility Design Practices.Autism in adulthood · 2026Article
- Empowering Informal Caregivers of Persons With Early-Stage Dementia by Large Language Models: Mixed Methods Evaluation.JMIR formative research · 2026Article
- Factors in Patient-Clinician Interactions That Influence the Decision-Making Process of Older Patients with Dementia.JMA journal · 2026Article
- Vaccination Rates Among Long-Term Care Staff During the COVID-19 Pandemic.Journal of the American Medical Directors Association · 2025Article
- An account of personal autonomy for people living with dementia.The Gerontologist · 2025Article
- Qualitative study of stakeholder perspectives on dementia policy implementation in Macao: progress, challenges and future directions.BMJ open · 2025Article
- The mental health implications of informal care receipt stability among older adults with persistent care needs.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Observational
- Longitudinal description of health-related quality of life and depressive symptoms in polyQ spinocerebellar ataxia patients.Journal of neurology · 2025Article
- Implementation of the Macao dementia policy: a scoping review for the way forward.Frontiers in public health · 2024Article
- Who's Involved? Case Reports on Older Adults' Alcohol and Tobacco Use in Dutch Residential Care Facilities.Qualitative health research · 2023Article
- Determinants of implementing of pet robots in nursing homes for dementia care.BMC geriatrics · 2022Article
- Family caregivers' perspectives on their interaction and relationship with people living with dementia in a nursing home: a qualitative study.BMC geriatrics · 2022Article
- It takes three to tango: An ethnography of triadic involvement of residents, families and nurses in long-term dementia care.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Evaluating the Impact of Community Gardening on Sense of Purpose for Persons Living with Dementia: A Cluster-Randomized Pilot Study.Journal of Alzheimer's disease reports · 2022Article
- Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care.Dementia (London, England) · 2022Article
- The Academic Collaborative Center Older Adults: A Description of Co-Creation between Science, Care Practice and Education with the Aim to Contribute to Person-Centered Care for Older Adults.International journal of environmental research and public health · 2020Article
- The "Caring Giver": Emotional Caregiving in the Setting of Essential Tremor.Research on aging · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
objectivesFor people with dementia living in residential care facilities, maintaining autonomy and receiving informal care are important. The objective of this review is to understand how caregiving approaches and physical environment, including technologies contribute to the maintenance of autonomy and informal care provision for this population. RESEARCH DESIGN AND
methodsA literature review of peer-reviewed articles published between January 1995 and July 2017 was performed. Realist logic of analysis was used, involving context, mechanism and outcome configurations.
resultsForty-nine articles were included. The improvement of the relationship between residents and formal/informal caregivers is important. This increases the knowledge (sharing) about the resident and contributes to their autonomy. A social, flexible, and welcoming attitude of the formal caregiver improves the provision of informal care. Specially designed spaces, for instance, therapeutic gardens, create activities for residents that remind them of themselves and contribute to their autonomy. Use of technologies reduces caregiver's time for primary tasks and therefore enables secondary tasks such as interaction with the residents. DISCUSSION AND IMPLICATIONS: The results revealed how residential care facilities could maintain autonomy of their residents and improve informal care delivery using caregiving approaches and the physical environment including technologies. The results are supporting toward each other in maintaining autonomy and also helped in enhancing informal care provision. For residential care facilities that want to maintain the autonomy of their residents and improve informal care delivery, it is important to pay attention to all aspects of living in a residential care facility.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.